Good Afternoon, all,
Itâs been a bumpy road since the last Update. Â I think we left off after chemo #4, and to begin with, it was a tougher week than normal directly after a chemo, so instead of going home on next Oncologist update Wednesday I went to ER, what I now call Wicked Wednesday, probably one of the worst days in this whole ordeal, but more on the prior week first before moving on to Wicked Wednesday. Â Despite it being a bad week directly after a chemo, there were some nice moments sprinkled hither and yon. Â One was a bowl of big gorgeous strawberries. Â I decided to have one, anticipating it would be a disappointment with my present weird taste buds in full monte, so to speak, but instead they were divine, but I only ate one. Â When I think of strawberries, I think of my visits this time of year to my lady friend in Laguna. Â She goes to a local farm that grows organic fruits and vegetables. Â And, during strawberry season there are racks and racks of fresh, plump, bright red, juicy, sweet strawberries. Â We bring back several little baskets and gorge ourselves on strawberries galore. Â Am I exaggerating, Christyne?
But back to Calabasas, where Eric, whoâs never made a bad meal, that Iâm aware of, suddenly, his food isnât working for me, Iâve discovered that I like bland food, and bland is not one of Ericâs fortes. Â Like here at the hospital which normally gives me no pleasure had mashed potatoes today, Hallelujah, lots of nutrients and calories, and devoid of anything the least bit exotic, plus, I have no fears mashed potatoes will not be able to slither past my golf ball, or maybe itâs a ping pong ball now, weâll know next Wednesday how Iâm reacting to the treatments. Â Anyway, one meal stands out from that first week, Eric made a Japanese breakfast: Rice, Seaweed, Ginger, and two eggs over easy. Â It was quite tasty, but not too tasty to disrupt my full monte taste buds. Â But, besides my thoughts on food, I decided I needed to soak in the jacuzzi. Â It was very pleasant while I was soaking in there, all alone, letting the jets push me around at their whim, willy nilly, to and fro, I was in paradise for awhile, but by the time I got back to the apartment, my energy had failed me big time, I was barely able to up the stairs, take off my trunks, and drop my wet towel on the hall floor leading to my (and Foxâs) bedroom, I was just totally zonked, I climbed in my bed and slept for the rest of the evening. Â
That was Monday, and then Tuesday I felt worse, then on Wicked Wednesday I was totally out of it, as much as I remember I was refusing food and water and other good stuff. Â All I wanted to do was sleep. Â So, Sylvie and Eric decided to take me to West Hills ER, where this crazy year began with the first staph infection. Â But, this time it was a bit of a mystery. Â it began horrific and ended not so bad, much better than the other way around. Â I was in a bit of a haze, nurses and doctors, and Sylvie and Eric swirling around me and faint voices which seemed serious, most of which I didnât hear well enough to determine the drift in conversation. Â One of the first tests they did was a chest x-ray, and soon after that Sylvie was at my side sobbing globs of unhappy tears. Â My recollection is that they had discovered in the chest x-ray that I had a punctured esophagus, which would have been horrific at this time in my treatment, heck, at any time. Â We had a half hour it must have been between this moment and the results from a Cat-scan that they decided to do, to see if the chest x-ray lied like you know who, or was as trustworthy as our mothers. Â During that time Sylvie was desperately reaching out on her trusty cell phone, to here phalanx of cancer experts and had discovered that Dr. Chao at City of Hope was the very best esophagus surgeon far and wide. Â
When the results came back theyâd determined it was fake news, no perforated esophagus, but I had some major infection going on somewhere, and some of the possibilities seemed just as bad as a perforated esophagus. Â So, the night wore on, they had me on three different antibiotics, plus a catheter to measure urine flow, with the thought I might have bladder cancer. Â They wanted to take me upstairs to the hospital, but we had to wait for a room. Â Sylvie and Eric waited until they got me one, around 2am. Â Once they got me out of that hard flat gurney, and into a soft form fitting bed, I hit the pillow and was out for the night.
After a solid night of sleep, I was a Spring Chicken the next morning, well, maybe an Autumn Chicken, still not up to snuff, but a whole lot better.  I cold sit up, walk and talk.  When the doctor came in I knew my name, birthday, and what the dayâs date was.  Plus, I inadvertently transmitted an important piece of information that the doctors hadnât know the night before, which was that I was getting that miraculous shot that boosted my white blood count.  That is why the doctors thought I had some voracious infection, but it was just my super duper expensive shot.  So, if the ironious high white count was not a high infection, what was it?  I had a bit of nausea, some acid reflux, a drippy nose, a hacking cough and even a return of my childhood asthma.  But, the basic problem seemed to be that I was dehydrated.  So, I asked some nurses, visited the web, and determined I needed from six to eight cups (8 oz) of fluids per day.  Sylvie has set that at two of my big 24 oz water bottles, one 12 oz Gatorade, and two Ensureâs, the latter being mostly for nutrients and calories.  So, finally on Friday the hospital ejected me, no rejected me, hold on let me take a deep breath and gather my thoughts, Iâm not the young buck I used to be, if I ever was ⌠they discharged me.  The nurses were gorgeous, prettier than any group of nurses I think Iâve ever had, and extremely nice, supportive, knowledgeable, and efficient.  I hated leaving those wonderful nurses, hovering over me every now and then.  And the Ultrasound was great too, no longer is it done with ice cold goo, but at last they use warm goo, what nice new pleasure.  Anyway, they finally discharged me, I was surprised that Iâd arrived in my pajamas and house slippers, but thatâs all they had, so it must have been.  It was late by the time we got home, but it was nice to get some cannabis and my trusty C-Pap machine.  I slept like bear deep down in a winter snow bank.
I started writing this on the day after Wicked Wednesday, and itâs now back to Wonderful Wednesday, our folo up meeting with Dr Shankar, and chemo #5, or as they call it End Chem rnd #1. Â But, Sunday, just a day after my discharge I was back at our old friends in ER. Â This time I was in excruciating pain in my urethra and bladder. Â It began innocently enough at about 3am Sunday morning. Â Suddenly I couldnât pee, I had the urge, but nothing arrived on the scene. Â So, I just kept pouring down the water. Â But by 7am, I realized that the more I drank the more my bladder filled up, and the more painful it all became. Â By the afternoon on Sunday, Eric and Sylvie were getting stressed out that I wasnât drinking or eating, and was having a cycle of pain periods that became more frequent and agonizing. Â So, back to ER. Â The doctor had told Sylvie that there was probably something obstructing my bladder entrance to the urethra. Â So, we toyed with the possibilities, the most likely being some problem with the gallbladder, which could be a major problem in our progress. Â
The first thing I did when we got there was request a pain pill, which Sylvie reminded me was the first time in all this imbroglio over the last year-plus. Â But, the pain was getting worse and I was getting less motivated to bear with it. Â The did some other things first, which seemed machiavellian at the time, but there was a good reason. Â The last thing they did was shove another catheter down my gullet, I mean my urethra, and about half way down, suddenly, I mean instantaneously the pain evaporated, no thatâs too slow, it vanished, like a magicians coin, in his hand one minutes, and then wham, it was no where to be seen. Â Thatâs how the pain disappeared, like magic. Â Turns out there was a blood clot no bigger than a grain of quinoa couldnât make it through the uretra, so it just sat there, not letting anything else get through, then suddenly this catheter emerges with a bright shiny face and an opening larger than the urethra, it pushes the blood clot aside, and before it can even reach itâs final destination, the clot has floated down the wide open spaces of the uretra into a tube that then receives the stored up fluid in the bladder. Â The nurse showed us the clot floating along the tube, happy as a clam. Â And, I had just got the closest thing to my first medical instant cure.
So, the Cancer Adventure continues, with chemo #4 being by far the worst two weeks in this adventure, sorta like plowing through the tangle jungle vines and overgrown greenery, then coming to an opening that looked out on a white sandy beach and an expanse of crystal clear blue/green water, and a sky to match. Â I suppose I should tell you my thoghts of pain in my past before getting to the good stuff. Â When I was a pre-teen a neighbor kid dropped a chisel on one of my toes. Â That hurt, it hurt a lot, although it passed once my mom sopped up the blood on the driveway and wrapped my toe and some soothing ointment in gauze, but I still have a toenail that is split in two. Â But, the other one that I thought of happened in Dallas, where a small crew, of which I was the cameraman, was wrapping up after a long day shooting a factory operation of a client of John Theile, the producer/director. Â No, I didnât get gobbled up by a piece machinery, but later as we packed up, and ready to getting in the car to a Texas bbq. Â
John was going to be sitting in the passage seat, and I was to be sitting behind him, as a true gentleman he held my door open for me, but with sluggish movements by both of us, he slammed the door closed before I was able to remove my fingers from the door jam, I too being sluggish to see it coming and pull away my hand sooner. Â But, the door closed first, slamming mainly on my big middle finger, and it hurt so bad I couldnât utter a sound, I was in shock I guess. Â When the sound man saw what had happened he yelled at John to open the door back up. Â When we were finally able to confiscate my fingers from the door jam, my middle finger had taken up the form of the door jam. Â It looked awful, but no bones seemed to be broken, no blood had emerged, and I was no longer feeling any of that agonizing pain, just a kinda pulsating ache and a tender bunch of fingers. We had a very tasty Texas bbq, pork ribs as I recall, at the time thinking they were the best pork ribs Iâd ever had. Â But that was years before I tasted Ericâs out of this world pork ribs, the megastar of pork ribs. Â But, in Texas I think it came with bbqâd corn, chunky corn bread, and watermelon. Â It was good, I slept well, and by the next morning my finger looked like a normal finger and the pain was almost negligible, reddy for our second day of shooting.
Anyway, to get back to Sunday evening returning from ER, Eric had marinated and barbecued a duck, with a barbequed melange of bok choy, oyster and enoki mushrooms, and baby corn, and a glaze Eric made from the duck liquid, orange juice, and other flavors, heated and stirred patiently into a thick sauce poured over the duck and rice. Â So, Sunday evening was the beginning of a couple of great days. Â Iâve had more energy, and I stay up longer, and my appetite seems to be somewhat restored as well. Â And Eric made a luscious duck soup with remaining duck carcass, and several exotic kinds of mushrooms and other veggies. Â I had it Tuesday morning for the first time topped with a couple of soft boiled eggs. Â It looked and tasted beautiful. Â So, Monday and Tuesday were pretty darn good, napped a bit, but also worked a bit on my computer. Â Tuesday evening we went into the local urgent care to remove catheter number two. Â But, that night I was able to tinkle at all. Â I was afraid I had another blood clot mucking up the works.
So, now itâs Wednesday, time for our consultation with Dr. Shankar, back from a relaxing Baltic voyage. Â He was a bit concerned about all my ancillary problems, some might be side effects, some may not. Â But he wanted to get to the bottom of it before we preceded with the chemo, which may not start until tomorrow now, maybe later. Â Also, the Cat scan they did in West Hills was not the Cat scan he ordered, so we have no news about how Iâve reacted to the chemo. Â Soooooooooo, Iâm back in the hospital, St. Joâs this time. Â Theyâll be doing a new Cat scan, and several other tests, the most serious is an MRI to see what, if anything, is going on with my spine, which could be a major problem, or nothing. Â Oh, and I got a third catheter in less than a week. Â Ow. Â
I guess thatâs enough for now. Oh wait, we had an early lunch at my favorite ramen restaurant, while we waited to get a bed at St. Joâs. Â I made my own, pork broth with fresh ginger, butter, poached egg, seaweed, and chicken wonton. IBut, now, âm having my Cat scan shortly, so I think Iâll just lay back and relax. Â I have three images today. Â One is what I looked like when Sylvie said I looked like Nick Nolte after a drunken barroom brawl, then another equally unflattering image of me In West Hills hospital after Wicked Wednesday, and last is Ericâs bbqâd duck with barbecued veggies, boy, that was good. Â Well, my hospital lunch just arrived, just the opposite of Ericâs cooking, Â tah tah, tee tee