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In early December we found out that our son is suffering from Congenital Diaphragmatic Hernia (CDH), where his diaphragm didn't full close. He is left with a hole in his diaphragm, allowing the organs in his abdomenal cavity to move into his chest cavity, restricting the growth of his lungs and affecting the positioning of his heart.

So far a portion of his intestines, most of his stomach, and now a portion of his liver is sitting in his chest cavity.

He'll need surgery with in days of birth to move the organs back into his abdomen and repair the diaphragm. He is expected to stay in the nicu a minimum of five weeks but could be up to 3 months or more, depending on his progress during pregnancy and how he responds and heals post surgery.

We hope to stay as much time as possible in the NICU with him during his time their.

And thats why I am posting this link today. Its hard for me to ask others for help, especially financial. It would mean the world to us if you could donate money so we can be there for our son.

Donations would go toward loss salary while staying with our son in the NICU, transportation to and from the hospital, food while staying there. Also the money would go toward things needed when we bring him home from the hospital, like the possibility for oxygen needs, feeding tubes and formula, medication, and other monitoring equipment he may need. Additionally, depending on how his hernia progresses before birth, we may need to relocate out of state and we want to be able to have that option to give him the best care.

@robert-the-foul @r0bilargreenleaf

If you can not donate, please share. I’ve provided two different fundraising sites:

In early December we found out that our son is suffering from Congenital Diaphragmatic Hernia (CDH), where his diaphragm didn't full close. He is left with a hole in his diaphragm, allowing the organs in his abdomenal cavity to move into his chest cavity, restricting the growth of his lungs and affecting the positioning of his heart.

So far a portion of his intestines, most of his stomach, and now a portion of his liver is sitting in his chest cavity.

He'll need surgery with in days of birth to move the organs back into his abdomen and repair the diaphragm. He is expected to stay in the nicu a minimum of five weeks but could be up to 3 months or more, depending on his progress during pregnancy and how he responds and heals post surgery.

We hope to stay as much time as possible in the NICU with him during his time their.

And thats why I am posting this link today. Its hard for me to ask others for help, especially financial. It would mean the world to us if you could donate money so we can be there for our son.

Donations would go toward loss salary while staying with our son in the NICU, transportation to and from the hospital, food while staying there. Also the money would go toward things needed when we bring him home from the hospital, like the possibility for oxygen needs, feeding tubes and formula, medication, and other monitoring equipment he may need. Additionally, depending on how his hernia progresses before birth, we may need to relocate out of state and we want to be able to have that option to give him the best care.

@robert-the-foul @r0bilargreenleaf

If you can not donate, please share. I’ve provided two different fundraising sites:

They changed his feeding tube from oral to nasal, they couldn’t get it back to the upper intestinal location so it’s going into his stomach now, which needed to happen anyway. They’ve been trialing how he does on feeds there by starting off small, they worked their way up to half of what he was getting and has been tolerating it well so far. Once on full feeds, they plan to remove his picc line.

Surgery team said they’d want him on 2L (he’s currently on 5L) of high flow oxygen before they’d attach his intestines together. Doctor thinks we can get him to that level with in a week and a half to two weeks.

During the surgery they’re going to put in a g-tube so they wouldn’t have to do it later if he needs it. So far he still hasn’t taken a bottle or anything by mouth beyond the feeding tube. We’ll still be practicing. I’ll have to ask when he’d be able to start on bottle or latch. Probably after the intestines are connected.

Doctor seems to think we could possibly get him home by my husband’s birthday in mid August. That’s something he really wants to happen so fingers crossed 🤞.

With all that being said, we’ve basically run out of the funds that were donated for daily transportation and food costs while we’re visiting our son in the nicu.