a bunch of archives of incredibly important government datasets like maternal mortality statistics are about to be deleted forever. in a regime where they're known to fudge numbers, we can't trust a lot of the data coming from them to not be altered. open source backups like those found on data.world are vital to being able to verify that the data coming from our government is still intact and not altered. and they're about to delete all of it.

i don't know if we need to start a petition or what. nobody seems to fucking care. there are millions of users on data.world and yet nobody is raising the alarm bells and it makes me feel like I'm going insane. somebody needs to do something. i don't know what to do. it feels like more and more of this world is being destroyed and dismantled. it's not only US centric data, either! it's all sorts of countries from around the world! and they're about to fucking delete everything.

the only things that won't be deleted are private companies who happen to use the paid version of their platform (which isn't accessible data to the open source community; some people have just been using their service to host their own data on privately)

and the kicker? this announcement was made... via an AI generated blog post. so not even any sort of human touch. just a generic, soulless announcement made by a soulless human about to take a wrecking ball to one of the more important websites that exists on the internet.

an example of some of the things that will be deleted on July 11th:

https://www.re3data.org

There are over 3500 respectable data repositories on one respectable global registry; to a researcher there’s no point in data existing if not findable; if you’re trying to find a new home for your dataset, start there

Here are some of the scripts I’m using to email University Research Librarians and department chairs/assistant and associate deans who I know oversee faculty who use resources from data.world for their lessons:

Here's a lineless drawing this time! This style is really appealing to me, it reminds me a lot of paper crafts or cards/books with little pop-out things (you guys know what I'm talking ab rite... 🥹❓

Too many girlfriends? Not a problem for the hawkfish! The species in this family are protogynous, meaning that all individuals start out as females at birth. As adults, they form harems around a dominant male; but if there are too many females, then one or more of them will change into males and branch off with up to half of the remaining females. Not enough girlfriends? Not a problem either! If the number of females in a harem gets too low, or if they lose a challenge from another male, the former harem leader will simply revert back to being female.

Postcards from Yellowstone

I have never seen another allergy that has been so viscerally hated and mocked by people working in education like nut allergies. I’ve seen fellow teachers cringe that their classroom was the “nut free” classroom that year. Support staff that are trained and willfully don’t follow cross contamination protocol in the lunchroom because it’s too “tedious” or “time-consuming”. Full preschools + childcare centers that refuse to accommodate nut allergies. Schools where the only free lunch is a PB&J. Before/after school programs and summer programs whose food curriculum has nuts and doesn’t provide an alternative activity.

Allergy discrimination is so so insidious and prevalent. It’s happening behind their back and it is everything from the exposure joke to possibly causing someone to go into anaphylaxis from willful ignorance.

I was not downplaying this. The stigma is real, and people are 100% willing to let people with allergies die.

When my mom tried to enroll me in preschool, the school principal refused any basic accommodations like asking everyone to wash their hands after lunch before re-entering the classroom, not bringing straight up peanuts to snack time, etc. There was no such thing as a nut free classroom at the time. The principal told my mom and me (I was 4 at the time and definitely in the room when this happened) “if she’s so sick, she belongs in a bubble, not at school.” THE FUCKING PRINCIPAL! My mom had to threaten legal action under the ADA to get them to comply.

Look, I was on a 504 accommodation plan under the ADA for the entirety of my formative education (elementary thru high school). That’s all 12 years!!! And yet I have had teachers hand me items I’m allergic to as a “reward”. I have had other kids intentionally try to send me into anaphylaxis. One girl in 3rd grade asked me why I “wasn’t dead yet” when she had put on a lotion with almonds in it and then held my hand. I’ve had other parents write letters to the school saying what a terrible inconvenience it was to them to not be able to send their kiddo to school with PB&J, demanding I be Removed to a special education only class if my “needs” were such a “burden” to others. During elementary school “parties” held in the classroom on holidays and for student birthdays, I was always sent to sit out in the hallway or go to the library, because even though parents were only supposed to bring safe foods into the room (they had a list of all my allergies) they never once got it right. Administrators fought me tooth and nail for the right to carry my epi pen and other meds on my person at all times. Why they thought I would start dealing benadryl on the playground, I do not know. At lunch, I was always sat at a specific segregated table labeled the “Nut Free Table” alone because who the fuck is going to sit there with the literally segregated outcast? But ONCE notably I was sat on one side of a line of blue masking tape down the table top with the rest of my class on the other. One side was the NUTS side!!! As if allergens would respect that tape barrier. (Spoiler alert: they do NOT!)

Literally from preschool to my senior year of high school, I was “the peanut kid”. Other parents gave my mom books about how to “cure your child’s food allergies from HOME” by micro dosing with things they are allergic to (please never ever ever even attempt anything like a food challenge with a known allergen outside of the care and supervision of a medical professional, holy shit that’s so dangerous). My mom joined the PTA in my last year of high school so that I could maybe participate in all the senior-focused events like pool parties and breakfast at school on the first Friday of the month. The number of times another parent either (a) decided it wasn’t worth it to care or (b) intentionally brought peanut products to an event to spite either me or my mom??? I literally could not count. It happened constantly.

College was better, but I still occasionally had people BALK when I asked them to please not eat a Nature Valley bar with whole nuts in it right the fuck next to me in lecture, thanks. Work parties and catered lunches were always impossible. A few conferences I went to as an undergrad were SUPPOSED to be nut-free, but always fucked up the catering. At one, they set up snack tables by every exit of the conference auditorium so that when people left after the talk, they all congregated around the exits and opened macadamia nut cookies and granola bars. When I had subsequently had a massive allergic reaction and needed help getting home (I’d walked) after taking like 200mg of benadryl, the staff offered me a stack of napkins and a lukewarm apology.

Food allergy is a disability which touches literally every aspect of a person’s life. Everytime I share with someone new about what it was like growing up with my allergies, they have never heard anything like it in their lives. They’re always like “holy shit, seriously??? People did that??? Kids tried to kill you??? Parents wanted you kicked out of the classroom????” Yeah, man. Yeah. My own brother (who doesn’t have any allergies at all) doesn’t understand why I don’t “eat more adventurously” and why I won’t travel internationally. So, saying it REALLY LOUDLY for people in the back: