That EDS Feel When...

I'm wondering if this happens to healthy people or if it's an EDS thing? When I just towel off after showering, it exfoliates me a LOT. Like my towels get covered in long strings of dead skin. As long as I'm slightly damp I can visibly exfoliate just by sliding my hands over my skin. I think it's part of why I'm so soft. Does that happen to healthy people?

Wound healing tips? I have HEDS, with what doctors think is a gnarly ingrown hair that then opened up to an inch-long wound, took a year to scar over, and has now reopened. It's looking like they'll have to cut it out and stitch it up but like, if it wasn't healing on its own a massive scar down my thigh isn't going to stay closed either, is it? Any ideas? I'm being referred to an EDS proficient surgeon but I'm still slightly unconvinced that this is actually going to work... thoughts?

The issue with blood pressure machines

Hey I've got a question. I've seen so many people talk about their dislocations as excruciating. Mine don't hurt that bad. Sure, my shoulder dislocating is painful, but I'm not freaking out? Is that the norm? Subluxations don't really hurt, it's feels sore but it doesn't hurt. Is this because I'm used to it or something? Id love some insight from other people

So I am going off to college next year and I'll live in a dorm so that means I'll have to share a shower with other people and I won't have a tub like I'm used to. When I stand to shower I get lightheaded and almost pass out so I usually can just sit in the tub and I'm fine. Does anyone have a solution for this while sharing a single bathroom with at least three other people?

Have any EDSers had issues without doctors believing their hips dislocated? I've spent 2 weeks in hospital after an incident in which I'm sure I felt my hip dislocate. There's extensive inflammation around the joint but no obvious cause - and they're adamant it couldn't have been a dislocation because 'that doesn't occur without massive trauma'. Yet there's no other explanation for the acute pain and lasting inflammation. I'm sure it came out of joint yet the doctors are adamant it couldn't??

Hi! I am starting the process of being officially diagnosed with EDS, suspected HEDS specifically. However, my mother died of something that I would consider random organ failure, but I have no idea how to even ask my doctors for genetic testing when she told me to "stop googling" when I asked to be tested for MCAS. I have a neurologist appointment this week and I don't know if there is anything I should ask her about, until I can find someone willing to diagnose me.

Hey; I subluxed my shoulder and I mean ow, but I am NOT willing to not Sport. Do you have any suggestions for tape or a… shoulder brace? Is that a thing? Or something? Thanks a million.