idk if this is the right place to ask about something like this, but i figured i might as well give it a shot
i’m afab, and in short one of my doctors thinks i may have NCCAH, and one of my doctors thinks i don’t and that i may have PMOS instead
generally my symptoms have been early puberty (starting growing body hair around age 7), LOTS of body hair, lots of acne, rapid growth as a child, irregular menstruation, clitoromegaly, and i’m not sure the official term for it but my urethral opening is like… inside the vaginal canal slightly. to the point where when i was menstruating i could not wear tampons comfortably and i get very frequent UTIs.
first doctor thinks i may have NCCAH because of the above symptoms, but the second one says there’s no way i do because in her words “it does not cause any difference to genitalia”, and also the fact that i am very tall, and she said adults with NCCAH generally have a shorter stature? and unfortunately i can no longer prove the clitoromegaly in any way as i have no pictures of it from before i went on T(a year and a half ago), and it has been dismissed as bottom growth.
does anyone else with NCCAH/PMOS/these symptoms have any insight?
The second one is just... lying...? Hell I've never heard of a doctor saying PMOS can cause genital differences but not NCAH. It's currently understood they don't cause genital differences because of symptoms becoming apparent after birth, but there's many anecdotes anyway of folks with only PMOS and/or NCAH reporting genital differences that can't be created after birth (i.e. labial fusion, urinary variation). The reason folks with (n)CAH tend to end up short is because of the hyperandrogenism, which generally causes more androgens to aromatize into more estrogens thus the growth plates close quicker because of extra estrogens floating around, and additionally precocious puberty in general increases the chances you'll turn out shorter because you stop growing earlier than non-precocious peers. But uh. It's... that's. Not everyone aromatizes the same, nor will everyone respond the same way to the same amount of estrogens???? Like... genetic diversity, bro. Some people can still end up a certain way despite their environment because their genes said so.
Also that would be called (vulvar) hypospadias, at minimum. If the urethra and vagina are in fact sharing an exit hole, it could be called a persistent urogenital sinus (PUGS) instead. Note that feels obligatory for me to add as well, I don't know why you felt like you needed to add the fact you were AFAB? It doesn't inherently tell me anything about your current/past body parts or experiences, except the fact a doctor looked at you when you were born and decided "female" will go on your birth certificate. I would've understood and answered this ask the exact same if you left that detail out.
