T1D is a 24/7 job... As a parent of a child with T1D, My experience is very different than my childs and others who also suffer! I can't feel his pain, yet I wish I could take it all away; sadly taking it away is far beyond my super hero abilities. What isn't beyond my ability is to at least help him carry the load. I know I can't carry it forever, but I can do my best to hold it down until he is ready to bare it on his own. All of my waking and sleeping moments are consumed by his every blood sugar level and diabetes management. I am constantly worried about if it's a safe number to leave the house, play outside, go for a car ride, sleep, and eat! I constantly worry about if I actually gave him enough insulin for the meal he ate, If his dexcom is working properly, how his blood sugar will do tonight when bedtime comes, how his fingers will look a year from now from all the finger pokes, how long he will have bumps and tiny scar tissue viewable on his stomach, arms and legs from the countless injections and dexcom sites! I worry about how he is going to mentally handle it as he grows up, and any time myself or a family member and especially other kids at school gets a cold if he will get it and then we will be hospital bound because it may send him into DKA. I worry that I worry too much and then I like to try to think I can just relax for a second... It runs through my head in an endless loop. Type 1 diabetes is a huge balancing act of trying to get the right amount of insulin into his body while taking account of the food, exercise, stress, hormones, growth spurts, weather and a million others things I have NO control over. In the quiet moments I stop and pray, pray for a cure and wish that T1D would just go away. I pray that friends and family will learn and want to help out and lighten the load for a second so I may have a small break, And then feel guilty as ever afterwards knowing that my son longs for the same very break! It saddens me. Every day is like studying for the most important test in your life and then the next day it all changes and all the studying doesn't matter. It's gaining a medical degree in a matter of days and then being left to make life altering medical decisions constantly... it's injecting medicine into your child that they need to survive but knowing that the very same medicine that keeps them alive can god forbid take their life in the blink of an eye.. *PLEASE DON'T ASSUME I'M EXAGGERATING WHEN I SAY MY SONS CONDITION IS A MATTER OF LIFE AND DEATH* it is living in constant fear that you cannot show the world. It's dealing with ignorance on a daily basis and judgment from people who have NO clue what it's like to live this life. It's about trying to get outsiders to understand that just about EVERYTHING has carbs in it, so YES! It's every bit necessary to test blood sugar, measure everything, calculate carbs to get the correct number of units to give and inject IN FRONT OF YOU! It is dealing with strange looks and rude comments from other people who as I stated haven't got the slightest damn clue, people who don't understand why you may be watching your kids every move and hovering over them always, and wondering why you just can't relax even though you are trying to let them be a regular kid but you know what number the little machine says, and you know the reality of what could come... It's about truly never really sleeping ever again... It's about holding your child while they sob because they don't want to live with this disease forever, they don't want to be poked and prodded and drug from doctor visit to doctor visit. It's dealing with the always there every day school issues that occur with your child's high & low blood sugars and how long it takes for their brain to clear and refocus to go on with the day... It's mountains of juice boxes and glucose tabs! Not to mention the fact that he suffers from Celiac Disease as well (that's a whole other story) & as a parent it's about losing a small piece of yourself daily because you are giving every single piece of yourself and so much more to your child and the disease all the while trying to function normally still as a person and be there for yourself and the rest of your family as well... It's about the constant worry about all the other health risks and complications that go along with the disease that can appear at any time! It's about learning who is truly there for you and who isn't. It's about packing for a small trip everywhere you go, making sure you have ALL supplies and snacks for lows. It's seeing your friends and family have much more energy, enthusiasm and a more positive outlook on life in general, meanwhile you are longing to be able to do the same. It's about holding your head up high at the end of EVERY SINGLE DAY, taking the deepest breath in and saying to yourself & I DID IT! I tackled all these things again today and I can do it again tomorrow! This is NOT a pity party; it is a PSA to please NEVER judge others! Especially when you don't know their daily struggles! A lot of people joke about diabetes, whether it's because they are about to eat a bunch of sugary junk food, or being lazy! I can assure you that it is NO laughing matter. Type 1 diabetes isn't caused by anything of the sort! There is nothing I could have done to prevent my sweet innocent child from being diagnosed with this vicious disease! There is NO cure, eating healthy and exercise will not change the fact that he still has it. Type 1 Diabetes is caused by genetics and unknown factors that trigger the onset of the disease! Nothing you say will change the facts! You should think about how ignorant you truly sound!! "The strongest people are not those who show strength in front of us, but those who win battles we know nothing about!"