#support narcolepsy

Julie Flygare is the very first person I’ve known to have Narcolepsy.  I read about Narcolepsy for years and mostly centered on scientific or medical data like from wikipedia, newsletters or school journals.  I never have encountered real stories from real people. I’ve surfed some support groups as well as researches employing PWN’s in the US, yet no first-person narration or name/face identification was absorbed in the mind.  Until I directly disclosed about my sleeping illness in the social media this year. I never hide it before though, there is a dedicated effort to make people listen. I met Julie via Twitter that brought me to her blog and Project Sleep, then simultaneously met other PWN’s too. She is now my mentor and friend. 

Forget what you’ve seen in the movies. Narcolepsy symptoms aren’t as obvious as you might imagine. Here, the under-the-radar signs of this mysterious sleep problem.…

Never heard of Narcolepsy before? This article is a friendly-read about the ABC’s of Narcolepsy.  It is to impart a handy overview of what Narcolepsy really is and its place in our society.

18 hours for #SLEEPIN2015 and counting. Philippine time (PHT) March 7, 2015 4:00 AM until 10:00 PM. I am so honored to be a part of the First International Sleep In by Project Sleep in celebration of Narcolepsy Awareness Day.

I envisioned this year 2015 to take me to a new twist and life-changing event, and it is the career aspect I'm most hopeful for. But before the career thing come into being, an unexpected life-change thing happened. Social media introduced me to new acquaintances whom I've been relentless in searching. The kindness and empathy of my family and friends were far from consoling, or maybe just occasionally, but I am sure have been needing more. These are people who feel me dynamically because Narcolepsy is also second nature to them. Though my new found group is virtual and long distance, the fact that Narcolepsy is also real to other people paved the way to my greater security which had been difficult to achieve when there is no one.