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I too have had recurrent subacute thyroiditis. The first month is the hardest. I am ten days into my current bout. You can ask me questions if you would like. Stay strong! It does get better. Ingrid
Oh my god, THANK YOU SO MUCH FOR REACHING OUT!! Would you message me off anon if you’re willing? How many cycles have you had? How long did it take you to get diagnosed?
Seriously, thank you thank you THANK YOU for reaching out!!!
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If you give me an email address I will contact you privately. I’m not that cyber savvy. I’m old lol!
My email is [email protected]!!
THANK YOU THANK YOU THANK YOU! 💖💖
your blog is really important and makes me feel less alone. i really hope that your RSAT search posts find somebody! also have a great weekend :-)
omg this literally made my night!! i’m so glad you feel less alone and i’m always here if you want to talk lovely!! I hope you have a great weekend too <3
Hi, I'm a spoonie as well. I have been diagnosed with rheumatoid arthritis and they're testing me on CIDP. I'd just like to tell you that you're very inspirational to me. I really hope you'll find someone with the same disease like you so you can support each other. You can do this, you're stronger than you think xx
Hi love, thank you so much, this is so sweet of you. I don’t really feel like an inspiration, but i’m honored you see me that way! Thank you thank you, and you stay strong too, alright? Sending love and spoons your way!
Praying you are having a good week and if not, that you'll have a splendid weekend. Read your post about your different conditions and I can't imagine how frightening it is for you. You seem like a super cool person (love the P!ATD shirt!) and I hope you have some sunshine in your life. <3
You are too cute oh my god thank you love! it’s been a little down hill - I’m fresh out of the ER but hopefully things calm down a bit soon! Thank you love and I hope you’re doing well 💕
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Sorry I don't have a cure for you, but I can at least provide solidarity in that my thyroid flip-flops too. It goes from too low to too high to sometimes kind of normal? No one has ever been able to explain it for me, other than maaaaybe some connection to seasonality (I always seem to start cycles around October and April?) So I get frequent blood tests to try and keep as even as I can. Anyway stay strong - endocrine shit is the absolute worst and the symptoms make you feel crazy. SO MANY.
That’s so weird, my cycles always start in October too! I mean, it skipped a year, but both times it happened it happened in October. And gosh yes, soooo many symptoms is the worst. Hang in there yourself, and thank you for the love and support! <3
Have you heard of PGAS? [Polyglandular autoimmune syndrome]. It involves multiple comorbid autoimmune problems sometimes involving the thyroid. You mentioned you had more than one illness and it made me think of it. Maybe linking with PGAS communities could help you on your search? PS, hope you're well this christmas~
I’ve never heard of it, but I’ve done a bit of research and that doesn’t sound like me :/. Luckily, the only endocrine issue I have is RSAT. My other conditions are Neurocardiogenic Syncope (form of POTs), Fibromyalgia, Primary Raynaud’s Syndrome, Celiac Disease, and Keratoglobus. I’m actually awaiting genetic results for EDS - they think I might have the cardiac type, so I’ll know a bit more in a week or so hopefully. And thank you so much love, you too! <3
Good luck on your search! Stay strong!!!! :D
thank you so much love! <3
