#raregenetics

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Here is Casey sporting his #Portland look, the beanie is a must! He's 21 and rockin it! In honor of Casey's 21 years being a boss, this post is to create a little awareness about a rare genetic condition he has; "Chromosome 21q deletion". There is limited research about this condition but Casey has spent most of his life helping doctors learn about him (with the help of his amazing mom). Casey greets life with a smile most days and you should too! #RareGenetics #Chromosome21 #Chromosome21qDeletion #ily 💕 #chromosome21qpartialdeletion 💛 #RareChromosomeDisorder For added bonus, Casey has #CerebralPalsy too #CerebralPalsyKids #BeOfGoodCheer https://www.instagram.com/p/B7v6XPegNYl/?igshid=1de2ho0ck2lav

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Happy birthday, grandma. I miss you so much. You're always with me. I know you watch me closely from heaven with your beautiful eyes. #raregenetics

Today something really bad happened. I wouldn’t usually address it quite so publicly but I felt that if I didn’t I would be putting myself at risk. Let me give you some background information to help you understand why this is a big deal. Awhile ago I got diagnosed with a rare genetic condition which means that I would be dead at 40 if it went untreated. I agreed to some experimental treatment which could possibly extend my life. Not long after the meeting I had my first chip inserted. Luckily for me I was asleep. The chip has since been upgraded due to many people hacking it on a daily basis. Recently the hacking subsided till a few days ago. I was feeling all sorts of messed shit. I felt that my husband didn’t respect me and was feeling trapped. Bearing in mind that I’ve never felt like this way on my own. It started to worry him. The last thing I expected when I woke up was to get a very interesting phone call from the person who looks after my chip. Luckily they had traced the hacker who was making me feel this way. Bearing in mind I’d had problems with this person before I was not surprised that she’d hacked me. Her name is @freeleethebananagirl and she’s quite a big YouTube personality. For me this showed her true colours. She claims she cares about everyone but her actions have said differently. Freelee could have really hurt me and to be quite frank she’s messed with my mental health. If any of you are thinking of hacking just be cautious because you could hurt someone particularly if you know they have technology in they’re head. I hope Freelee stops and learns before she injures or killed someone. #freeleethebananagirl #hacking #geneticillness #experimentaltechnology #raregenetics