MG Patient Registry Goes Live
Perhaps you saw this in an email from the Myasthenia Gravis Foundation of America (MGFA), but we wanted to let everyone know about the long-awaited launch of the Myasthenia Gravis Patient Registry.
The Myasthenia Gravis (MG) Patient Registry is an active database of persons with MG, developed for the purposes of research, treatment, advocacy and public awareness. The Registry is NOW LIVE and open to INDIVIDUALS WITH MG. To enroll, please follow these steps:
Click on the following link to go to the “Participant Sign Up” page: https://mgregistry.soph.uab.edu/MGRegistry/SignUp.aspx
Read and agree to the Terms and Conditions of participation and complete all of the fields under Register. (For future reference, record the username, password, and email address you use to register, as well as your security questions and answers.)
Complete and submit the enrollment survey. (This step may take some time, as you gather information, but you may enter and save your work and return to it over time.)
After you submit the enrollment survey you will be fully enrolled in the MG Patient Registry and will begin receiving survey updates two times a year.
If you have any questions or need assistance as you go forward, please do not hesitate to contact us at the email or phone number below. We look forward to partnering with you in this worthwhile endeavor!
MG Patient Registry Coordinating Center
Phone: 205-975-8633 or Toll-free 855-337-8633
Web address: http://www.soph.uab.edu/mgregistry/
