Sep 23, 2019
Me: *takes immune system suppressants*
Me: *gets sick*
Me:
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Me: *takes immune system suppressants*
Me: *gets sick*
Me:
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I am really nervous about starting azathrioprine (imuran) for my crohn’s. I’ve got the packet waiting on my medicine cupboard but I’m just so worried about taking it right now.
My son’s mental health has really taken a blow during covid lockdown and it’s taking all the energy that my partner and I have to keep it together and support him. I have none left for myself. And I can’t afford to be wiped out by side effects. That’ll put even more pressure on my partner and he hasn’t got it to spare either.
So the azathrioprine and the Prednisolone are wait in the cupboard and I keep putting it off day after day. But I also can’t let this flare go on.
Gotta start tonight I guess and hope the side effects don’t knock me flat. And the prednisolone tomorrow— that’ll be a trip.
The increased Imuran dose is hell. My entire upper body hurts so badly that I want to scream. Now I remember how bad it was. Holy shit.
It would be easy to complain that I am sick. 27 years old and functioning like a 97 year old. But, oh how I rejoice! Let me count the ways. I have a stable career that allows, and even encourages me, to put my health first. I have friends who love me and understand that I can't always participate the way I wish I could but never, ever let me feel left out or forgotten. I have family that takes care of me in every way. They will never let me feel alone. I have a partner who supports me in such a way that words cannot explain. It takes a strong man to stand by a woman in her weakest moments. I have my undying faith in myself. I know, now, with certainty, that I will endure anything life throws my way. Yes, I could pick apart my thorns. But I'm too busy smelling roses.🌹
when you're on two different immune system suppressants and the coworker who sits beside you starts coughing
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Okay, so, my GI doc called and we’re going to switch up some meds. Doubling the Imuran to 100mg daily and increasing the Humira to one pen every 5 days. Hopefully it should get everything under control IF I’m not exhausted all the time.