#hdawareness

Please help me spread awareness about Huntington’s Disease.

If you don’t know what Huntington’s is.. please take time to click on my link and have a full explanation on what Huntington’s is, the symptoms and my story on why i am doing this jump.💓

Huntington's Disease Awareness Month is a dedicated campaign held each May to increase understanding of this inherited, progressive brain disorder that breaks down nerve cells over time, affecting physical and cognitive abilities. Labzee joins the global community this month to elevate visibility and show support for families, advocates, and researchers working toward effective treatments and a future cure.

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FX’s “The Old Man” TV Series on Prime and Huntington’s Disease

I find it incredible, and encouraging, that “Huntington’s Disease” (HD) has turned up in many TV series over the past 10 years. To name just a few:  Call the Midwife, House, Scrubs, ER, Breaking Bad, Philharmonia, Without a Trace, Revenge and many more. John and I discovered yet another TV series where Huntington’s disease was in the first episode of the new FX series, The Old Man.  Jeff Bridges,…

A Play, “Red Winged Blackbird” About a Family’s Experience Living With Huntington’s Disease

Alyosha Zim’s new play Red Winged Blackbird opens on March 4 (Preview March 3) running through March 20 in the newly renovated Live Oak Theater 1301 Shattuck Avenue, Berkeley. Red Winged Blackbird is a story of transcendence, of rising above the frustrations of family struggles, inherited disease (HD), and dogmatic beliefs, to do what’s needed in the name of love. OnBroadwayWorld.com in San…

Prilenia Receives Fast Track Designation for Pridopidine for the Treatment of Huntington’s Disease

I want to make sure this important information is shouted out around the world because, if clinical trial phase 3 on Pridopidine is successful, the drug can change the lives of the Huntington’s disease community around the world. Naarden, NL, 17 November 2021 –” Prilenia Therapeutics B.V., a clinical stage biotech company focused on developing novel treatments for neurodegenerative and…

Online Silent Auction Supports Community & Social Support for Huntington’s Disease Families

Author Therese Crutcher-Marin, HD Advocate The HDSA San Francisco Bay Area Affiliate is hosting an Online Silent Auction to help fund resources available to individuals or a family when they learn that their mother, father, grandmother, etc. has or had Huntington’s disease (HD), like my family did.  It’s life changing.  The good news is that the nonprofit, Huntington’s Disease Society of America…

Huntington’s Disease Virtual Team HOPE Walks In San Francisco Bay Area

The HDSA San Francisco Bay Area Affiliate is hosting two upcoming fundraisers to support two (2) HDSA Centers of Excellence; at Stanford and UCSF Medical Center, three (3) Huntington’s disease (HD) local support groups in Palo Alto, El Cerrito and Mill Valley and many online free resources available to HD families in the San Francisco Bay Area and across the U.S. We had hope that we could host…

The Rarity of Huntington’s Disease in the San Francisco Bay Area

The San Francisco Bay Area is huge; approximately 7.75 million live in the North Bay, South Bay and East Bay.  Because Huntington’s disease (HD) is a rare disease it affects approximately 100 people per million or 10 per 100,000.  Juvenile Huntington’s disease (JHD) occurs in approximately 16% of all cases. Huntington’s disease is not prevalent within any particular population. All races and…