#guus

Before the pandemic started I had just started to get on the right track after an apartment fire 3 years ago at the time. Everything was thrown off by that and I developed PTSD from the event. My health and mental health conditions were well managed, including my agoraphobia and I was in good health.

Even as I sheltered in place for approximately 3 years and only did essential activities and went to essential places I still contracted covid. Sadly my carer brought it into my home and I've suffered with long covid immediately subsequent to my acute infection ever since (August 28th 2022).

It's turned my life upside down. I had planned on starting to ride my bike and now it sits in my apartment untouched. I struggle to walk, sit and balance especially for prolonged periods, at the ripe age of 31. An issue I didn't have before remotely.

And yet doctors keep mentioning anxiety, that it's not conclusive despite not studying up to date literature and published research on covid and long covid. I have no purpose for my shoes much either because travel is taxing on my body. In fact I've been at my mom's house for almost a month because I'm not well enough to return home.

Even paid my rent and electric digitally. My patio remains unoccupied, partly because I don't want harassment about wearing a mask outdoors but also would rather not see my neighbors. One of which harassed me and my carer after coming back from a very stressful dentist appointment with appalling covid safety and not having slept that day.

My computer collecting dust, partly due to the winter storm a couple months or so ago that knocked out my power and messed up the boot sequence, but also not being able to sit at and use it without swaying, heart palpations, feeling faint, and for long periods.

My kitchen sink, cooking utensils and ware goes unused most of the time because my new illness has largely robbed me of the energy and focus to prepare and cook meals. And my apartment tends to occupy me or my one support staff because of my fear of a repeat incident of someone bringing disease into my house. A disease that if I catch again well may kill me, or, faster.

My shower usually is dry as a bone, baths and showers leave me flaring and wiped for days. My hair products sit frequently untouched as I'm too exhausted to brush, braid, cover and moisturize my hair. As do my free weights and elastic PT bands. Ever since I got sick I lack stamina, experience shortness of breath (I had asthma but it was well controlled), my heart rate spikes and I can't exercise in any way that would hit targets or be beneficial.

And still my doctor recommends physical therapy despite telling her all this. And worst of all won't give me a long covid diagnosis. She kicked me to specialist.

Specialist who are already booked out, and whose schedules and patient lists keep lengthening because of the sharp and continued rise in long covid. Knowing it could take months for me to get a diagnosis this route and even longer to get new disability aids I need if I even get documents and approvals at all.

That I can't possibly afford because I'm dirt poor. To add pain to injury, I was disabled before this. And I understood the seriousness of covid and long covid. And took every precaution. But in a society that's a threat to life and safety, I was only as safe as everyone else was and is.

Which means I wasn't and still am not. Not only do I have whatever implications and damage short and long term from my first bout of illness, I constantly have the threat of reinfections and death everyday.

And finally, I have no use for many of the chairs in my home as my brain, neck and spine struggle to keep me upright. My body is in some ways new to me and after 3 plus decades in it, I have to learn it all over again.

And am confronted with no longer being able to do what I once did (possibly ever again) with great sadness nor test limits without high risk and unpredictable results. And it is a terrible, deeply off putting, arrogant and cruel insult to hear people write off or outright deny long covid exists and call long covid a cold. It fucking isn't.