#getyourshittogethermsk

I passed a big milestone over the weekend.  One hundred days since transplant.  I’ve been cleared to go a restaurant and can eat many of the restricted foods from the low microbial diet I’ve been on since being diagnosed with leukemia in July.  Six damn months have passed since I was able to eat certain things, and I am so ready.  Still not sure when I can have wine, but that question will be asked this week.

But last week I had my 90 day bone marrow biopsy, which was fortunately NOT a disaster like the last one.  Though I waited 20 minutes past my appointment time, the procedure went smoothly and only took 15 minutes (still no dilaudid).

Then I was sent to another room to wait to be called to do my labs.  When that finally happened, they drew enough blood to fill about eight vials then I went back and waited for another team to call and do my vitals.

Once I got into THAT little room, I had to instruct the nurses that they were supposed to be doing orthostatic vitals rather than regular ones.   They had to check that out with my doctor’s office because no one had changed the orders in the computer.  I was right, of course, because I know what procedures I’ve been getting for the past month, but why would anyone bother to inform the staff in the communication system they use?

Then I was sent to yet another room to wait to see my doctor for my 11:30. Since patient’s time is not valuable, I waited two hours for my 20 minute visit.  I was very pissed off about this.  I did have a nice visit during my wait with an older lady who is a month and a half ahead of me on the recovery schedule, so we swapped stories.  She has a lot more hair growth than I do, but my nails are recovering faster.  She said she would see me at the big survivor party in October if not before.

The punchline to all of this is the phone call I received at the end of the day on Friday informing me all of my blood work got screwed up because of the new tubes they’re using and can I drop everything on Monday and have it redone.  I refused, citing other commitments (which I actually do have).

I just wonder why they can’t get their shit together.  Now I have to be there at 8 am tomorrow so they can check and see if anything is different from the week before and give me a bag of hydration I can’t possibly need if the three trips to the bathroom I take each night are any indication. 

I was promised once a week appointments.  I’m wondering if that’s ever going to happen.  Six months on, patience is at an end.  END.  Good thing I don’t have anything else seriously wrong me with me, huh?