#foxspeaks

I hope you're doing well. Today, I’m reaching out with a heartfelt request. My family is going through an incredibly difficult time, and I need your help to make our story heard.

🔄 A simple reblog of my pinned post can spread awareness.

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@nasr-daher

Even the smallest act of kindness can create ripples of change. Your support means the world—thank you for standing with us! 🙏✨

Now this wasn't totally unexpected. I have been trying to figure out some neurological symptoms for years. I thought I was just migraine and vertigo. But recently I had been researching seizures. And I was reflecting on a bunch of weird symptoms I had been ignoring my whole life. And things were kinda matching up. I thought there was a chance I had been having like 'small' less noticeable seizure activity for most of my life.

But also I was crazy gaslit about my health as a kid and medically neglected so I thought 'no way am I right.' So I did what any reasonable person would do. (No) And I put on a video with lots of flashing lights (flashing lights have always bothered me and I try to avoid them) to prove myself wrong. Prove to myself that this wasn't real and I was just being dramatic. (Don't fucking do this holy shit this was a bad idea. So fucking unsafe. My partner was so reasonably upset. )

And then I had a fucking seizure. So I called my doctor and she set me up with a referral for an EEG and a referral for a neurologist. After a few days I was still having an uptick of symptom so I went to the ER and they ran a bunch of tests. The tests all came back clean. Which means it was a seizure. And they did a consult call up to neurology and they decided I was at a high enough risk and clear enough symptoms to just put me directly on seizure medication. I guess it makes sense. Neurology is slammed in my area and there was no way I could get in to see anyone for like 6 months.

It all feels so surreal though. I thought I was being CRAZY and making it up. and now here I am on seizure medication (keppra for anyone wondering) and being told not to drive and it's just wild. My whole life changed so immediately.

But I'm not really that upset. Most people I know expect me to be upset. I'm kinda relieved. Because again I have been brushing off and ignoring and trying to figure out a whole fuck ton of symptoms for as long as I can remember. For 30 years. I have spent so much time thinking I was dying of one degenerative disease or another because my body and brain always felt just a bit outside of my control and no one else seemed to have that problem. So finally having some sort of idea on what is going on is such a fucking relief.