#fightingthestorm

#Repost @kbromberg with @get_repost ・・・ “Can you still see the stars at night?” After reading “Storm & Fury,” by Jennifer L. Armentrout, many of her fans were really hit by what Jen and many others go through, on a daily basis, dealing with a disease called Retinitis Pigmentosa (RP). So a small group of her fans rallied together, and over the course of three months enlisted almost 1,000 people from all around the world in a campaign called “Fighting The Storm”. We have made it our mission to spread awareness of RP, which is a group of rare genetic disorders that involve a breakdown and loss of cells in the retina—the light sensitive tissue that lines the back of the eye—and causes progressive vision loss. We would really like to make many more people aware of this illness and share how it affects so many lives, including our amazing Jennifer’s. So here we are, sharing our pictures with these very special designs we created, using a quote from “Storm & Fury.” “Can you still see the stars at night?” These words may seem odd or small to some, but it’s something we can so easily take for granted. Just looking up and being able to see the stars. This is something Jennifer’s doctor asked her, and it really brings this disease into perspective. Those with RP will one day look up and those stars will be gone. The character in this book showed such strength, not letting her illness define her and she found ways to work around it. Just like Jennifer does every day. Why “Fighting The Storm” you ask? Yes, it relates to the book title and the character within, but there is a deeper meaning behind it. Everything we know about this illness, and other invisible illnesses, they are 100% without a doubt like fighting a storm, and through this campaign and raising awareness we are head-on fighting that storm that tries to control us. We fight the storm while it fights with fury . . . but the things it didn’t count on were love and friendships. That’s what truly helps us keep fighting. If you wish to donate to this cause this is one of the foundations that Jennifer’s supports: https://nfb.org “Can you still see the stars at night?” #stormandfuryRP #findacure4RP #FightingTheStorm https://www.instagram.com/p/B2nGAYTAwcp/?igshid=q9s0mn76djf1

#fightingthestorm #findacure4rp #jenniferlarmentrout #stormandfuryrp https://www.instagram.com/p/B2mc4M5ghWL/?igshid=pz8athgmq9rs

“Can you still see the stars at night?” After reading “Storm & Fury,” by Jennifer Lynn Armentrout, many of her fans were really hit by what Jen and many others go through, on a daily basis, dealing with a disease called Retinitis Pigmentosa (RP). So a small group of her fans rallied together, and over the course of three months enlisted almost 1,000 people from all around the world in a campaign called “Fighting The Storm”. We have made it our mission to spread awareness of RP, which is a group of rare genetic disorders that involve a breakdown and loss of cells in the retina—the light sensitive tissue that lines the back of the eye—and causes progressive vision loss. We would really like to make many more people aware of this illness and share how it affects so many lives, including our amazing Jennifer’s. So here we are, sharing our pictures with these very special designs we created, using a quote from “Storm & Fury.” “Can you still see the stars at night?” These words may seem odd or small to some, but it’s something we can so easily take for granted. Just looking up and being able to see the stars. This is something Jennifer’s doctor asked her, and it really brings this disease into perspective. Those with RP will one day look up and those stars will be gone. The character in this book showed such strength, not letting her illness define her and she found ways to work around it. Just like Jennifer does every day. Why “Fighting The Storm” you ask? Yes, it relates to the book title and the character within, but there is a deeper meaning behind it. Everything we know about this illness, and other invisible illnesses, they are 100% without a doubt like fighting a storm, and through this campaign and raising awareness we are head-on fighting that storm that tries to control us. We fight the storm while it fights with fury . . . but the things it didn’t count on were love and friendships. That’s what truly helps us keep fighting. If you wish to donate to this cause this is one of the foundations that Jennifer’s supports: https://nfb.org “Can you still see the stars at night?” #stormandfuryRP #findacure4RP #FightingTheStorm #SeeTheInvisible https://www.instagram.com/p/B2mU5b9lCRy/?igshid=dq9lt8kx09h7

"Can you still see the stars at night?" If you want to donate to find a cure for Retinitis Pigmentosa you can do so here https://nfb.org NOTE: I did not take these photos, nor do I own them. I only edited them with our campaigns quote. Credit goes to the photographer. #retinitispigmentosa #findacure4rp #stormandfuryrp #stormandfury #fightingthestorm #freetheorigin #canyoustillseethestarsatnight #jenniferlarmentrout #trinity #zayne #theblondebooklover @jennifer_l_armentrout https://www.instagram.com/p/B2l5gmZIP9b/?igshid=10op8vve5fc1p

“I’m guessing the sky is full of stars?” “It is, but the only ones that matter are the ones you see.” https://nfb.org NOTE: I do not own the original photograph. I only edited it to add the campaigns quote. Credit goes to the photographer #retinitispigmentosa #findacure4rp #stormandfuryrp #stormandfury #fightingthestorm #freetheorigin #canyoustillseethestarsatnight #jenniferlarmentrout #trinity #zayne #theblondebooklover @jennifer_l_armentrout https://www.instagram.com/p/B2l5d3CIlou/?igshid=wqs1oqaq4kn6

“And the stars?” A faint smile tugged at my lips as I recalled what the eye specialist in Morgantown had once asked me. “At my last appointment, about a year ago, my eye doctor asked if I could still see the stars at night. It was weird when he asked, because I had to think about it and I realized I couldn’t answer the question,” I admitted. “I hadn’t looked up at the stars in, like, forever, and it sort of hit me, you know? That one day I would look up and I wouldn’t see a star, and that would be it. I’d never be able to see something so...beautiful and simple again. Up until that moment, I’d taken that for granted. So, every night, I look up to see if I can see the stars.” Zayne didn’t respond, but I felt his intense gaze on me. I started twisting my hair as I lifted a shoulder, unsure of what else to say. “So, yeah...” A moment passed. “Can you see the stars now?” https://nfb.org #retinitispigmentosa #findacure4rp #stormandfuryrp #stormandfury #fightingthestorm #freetheorigins #jenniferlarmentrout #trinity #zayne #theblondebooklover @jennifer_l_armentrout https://www.instagram.com/p/B2l5cY-IHG1/?igshid=1s72nugosocgn

“Yeah, I don’t think most people do. You know? Most people only think of the blind and the seeing, and they have no understanding or concept of everything in between. I don’t hide that I have this disease.” I looked over at him. “I’ve just learned to compensate for it, so much so that sometimes even I forget...but then I walk into a door or a wall, and then I’m quickly reminded.” https://nfb.org #retinitispigmentosa #findacure4rp #stormandfuryrp #stormandfury #fightingthestorm #freetheorigins #jenniferlarmentrout #trinity #zayne #theblondebooklover @jennifer_l_armentrout https://www.instagram.com/p/B2l5aEPIIM-/?igshid=xv15v0uec2yg

“Yeah, if something comes at me from the side, I often can’t see it until it’s, like, right there, in my center vision. My eyes don’t adapt well from light to dark, and extremely bright light is just as bad as extremely dark areas. There are...tiny black spots in my vision, kind of like floaters, and they’re easy to ignore at this point, but I have cataracts already. It’s a side effect of these steroid eyedrops I had to take when I was younger.” I shrugged and started walking along the edge again. “Which is why the moon actually looks like two moons on top of one another until I close my right eye.” https://nfb.org #retinitispigmentosa #findacure4rp #stormandfuryrp #stormandfury #fightingthestorm #freetheorigins #jenniferlarmentrout #trinity #zayne #theblondebooklover @jennifer_l_armentrout https://www.instagram.com/p/B2l5YPpIG-b/?igshid=sk5t6ga19cke