#edswarrior

Do not apologise for listening to your body.

You take that nap.

You cancel those plans if you don't feel well enough to go.

What’s it like to be high functioning and chronically ill? Probably not what you think unless you’ve been there.

Being chronically ill has a lot of baggage and a lot to think about all the time. Your brain I constantly thinking and calculating of how to do every single small task in the most comfortable way for the least amount of potential pain. On top of that, I also carry OCD. OCD isn’t being a neat freak or like things in color order. It’s a compulsive constant stream of thoughts that repeat and repeat until you act on them.

I work 40 hours a week, so physical therapy, and do other forms of exercise such as playing casual basketball, spikeball, corn hole, tennis, biking, etc. There are days when I have severe muscle aches throughout my legs, on top of extremely loose and painful joints, to where I can barely move — but I’m still working. It’s an unbelievably task to bear, but I’m one of the lucky ones who is even well enough to work!

My best advice is to make it a point every second of your day to make yourself as comfortable as you possibly can. DO YOUR PHYSICAL THERAPY. Don’t listen to every doctor, most of them are wrong when it comes to EDS. I have heating pads, I’ve packs that Velcro around my legs, compression gloves, tons of blankets, a memory foam pillow and mattress, in-soles, and weighted blankets. Do what’s best for you. Drop people, even family, who don’t believe your pain and health are real.

Feel free to message me if you want to talk more! Only about chronic illness.

imagine if every minute of everyday people didn’t believe you; family, friends, work and even your doctors become deaf to your words because of how little they take your account seriously

Think about the turn your life would take..

You’re so lazy! Get up and do something and you’ll feel better. Help us out it’s for the better.

Physically and/or mentally ill people :

I hope everyone had a good Christmas! I’m so sorry I haven’t been posting or reblogging.

I gave birth to my little girl on the 25th November at 23:38pm. I was induced at 37 weeks due to her not growing and she entered the world weighing only 5lbs 3oz. It was a pretty traumatic experience all in all as I ended up with a c section under general anaesthetic.

Having a newborn when you have EDS has been a definite learning curve! I’m exhausted in a way that I never knew, but she is so worth it.