âš”UNA PEQUEĂ‘A AYUDA, UNA GRAN ESPERANZAâš” Caye y Celia son dos hermanas gemelas de Lousame (A Coruña) que cumplirán seis años en marzo. Son como cualquier niña de su edad, excepto en una cosa: son portadoras de la heteroplasia Ăłsea progresiva (POH) y una de ellas mostrĂł los primeros sĂntomas al poco de nacer. La POH es una enfermedad ultrarara progresiva, invalidante y degenerativa que calcifica mĂşsculos y tendones. Existen dos casos en toda España y 62 en todo el mundo. Se necesitan recursos para seguir investigando. Puedes colaborar haciendo una donaciĂłn a @asgpoh (AsociaciĂłn Galega de Heteroplasia Ă“sea Progresiva), se necesita ayuda para seguir investigando, al no ser una enfermedad extendida entre la poblaciĂłn mundial los recursos econĂłmicos son muy escasos, por no decir prácticamente nulos. âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž– âš”A LITTLE HELP, A GREAT HOPEâš” Caye and Celia are two twin sisters of Lousame (A Coruña, Galicia, Spain) who will be six years old in March. They are like any girl of their age, except for one thing: they are carriers of Progressive Osseus Heteroplasia (POH) and one of them showed the first symptoms shortly after birth. POH is a progressive, crippling and degenerative ultrarare disease that calcifies muscles and tendons. There are only two cases in Spain and sixty-two in the whole world. Resources are needed to further investigate. You can collaborate by making a donation to @asgpoh (Galician Association of Progressive Osseus Heteroplasia), help is needed to continue research, as it is not an extended disease among the world's population, economic resources are very scarce, practically nonexistent. #POH #CayeyCelia #ellasexisten #enfermedadultrarara #colaboraPOH #donarparainvestigar #subetufotoycolabora #ultrararedisease #donatetoresearch #asgpoh #colaboratePOH #beardedvillainsspain #beardedvillainseurope #beardedvillains #stayloyal #staybearded #stayvillain âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž–âž– BΣΛЯDÎŁD VILLΛIĐźSâš” • RISE OF THE BROTHERHOOD • •Stay Bearded •Stay Loyal •Stay Villain 🎩🔪🍻👊 @beardedvillainsspain @beardedvillains_europe @beardedvillainsspain
