#ciforssd

10/22/15

It took us awhile to get an appointment with our very busy ENT, Dr. John Niparko at USC, to get our MRI results.  He has become so busy that he only comes into the office once a week, so getting an appointment is like winning the lottery.  We had one scheduled for about 5 weeks later (I know, crazy, right?) and went in for the appointment.  We get there and immediately we can tell something is wrong... they didn’t have our scans.  HOW FRUSTRATING!  Now, if this were almost any other situation, I probably would just go to a new doctor, but Dr. Niparko is supposed to be the best surgeon around, especially with kids, so if anyone is going to be doing this surgery on my baby girl, it’s going to be him.  So we suck it up and wait a little but longer...

We ended up bringing our own copy of the MRI into them to upload to their system the next day, and they said they will call us with the results in a few weeks.  A FEW WEEKS?!?!  Are you joking?  This is a joke, right?  Nope.

After bugging them almost every other day for the next week, Dr. Niparko’s nurse calls to let me know that they need to forward the scans to the neuroradiologist to get better measurements.  Not sure what all that means, but I gathered that it meant that something was abnormal.

Finally, they called me with the results...

Ruby is missing her left cochlear nerve.  Therefore, she is not a candidate for a Cochlear Implant after all.  Ugh.  Part of me is pissed that we went through all of that for NOTHING.  But the other part of me is relieved that we at least have the results and she will not have to undergo major surgery (at this time), and we finally can go ahead with getting a BAHA.