#chronicallyfabulous

Necklace: Bisoulovely

I can look in the mirror and still recognise that little part of myself that remains, that shard I guarded and made the conscious effort to preserve. I can draw strength from knowing this ridiculous disease hasn't taken it away from me. It has taken so much else, but it can't have this.

This morning I had enough energy to create content for a whole hour WITHOUT feeling so weak or in pain I wanted to cry. It's first time in months, I know its still a long road to getting my chronic illness truely managable, but I have a little hope again! Today mostly made stuff for my subs💙🤍🔗! I set a goal for myself too (its good to have something to focus on other than my poor health 😅), I've never sold 50 videos in a month before, but December is my month baybee and I'm going to give it everything I've got!

💙💙 Having a chronic illness or more than one not only feels like someone stole your identity, it feels like they stole everything from you as nothing is the same anymore and that is hard to come to terms with! 💙💙 . . Photo credit to @itsmychroniclife . . 💙💙 . . . . . . . . . #relatablecontent #chronicillnesshumor #chronicallyfabulous #sickchick #sickaf #chronicbadass #chronicallyawsome #invisbleillnessawareness #healthmemes #symptoms #spoonielife #chroniclife #sicklife #disabledlife #endometriosis #invisbleillnesswarrior #endometriosisawareness #endometriosisuk #millionsmissing #chronicpainwarrior #chronicfatiguesyndrome #chronicillnesslife #chronicillnesscommunity #spooniecommunity #endocommunity #addisonsdisease #endosisters #addisonsdiseaseawareness #mentalhealthawareness #bpdwarrior (at United Kingdom) https://www.instagram.com/p/Cg2UPJVreO_/?igshid=NGJjMDIxMWI=

Glasses are now a permanent fixture due to my vision being so bad! I still only have a small amount of vision in my left eye and slight more in my right eye but the small amount I do have is clearer than it was. I actually didn't realise how badly my eyes had deteriorated until I got my new glasses. . . This is thanks to the addisons Disease and is apparently a well know issue for people with addisons which sucks. . . I also spoke with my psychiatric doctor and once again due to addisons I need to have a medication change because addisons can effect your heart too and the medication I'm on also effects your heart so I slowly need to reduce one lot over the next four months and then be put on a new medication in it's replacement over 6 months so it will be about 10 months until I'm completely switched over but it has to be a slow process to not put my body into crisis. I also need an ECG to just make sure that it's doing okay. . . So that was my week last week when I was banned and couldn't update you 🤣 so yeh addisons Disease is making things difficult but unfortunately there is nothing I can do about that. . . What did you do last week? Anything exciting? . . . . . . . . . . . #relatablecontent #chronicillnesshumor #chronicallyfabulous #sickchick #sickaf #chronicbadass #chronicallyawsome #invisbleillnessawareness #healthmemes #symptoms #spoonielife #chroniclife #sicklife #disabledlife #endometriosis #invisbleillnesswarrior #endometriosisawareness #endometriosisuk #millionsmissing #chronicpainwarrior #chronicfatiguesyndrome #chronicillnesslife #chronicillnesscommunity #spooniecommunity #endocommunity #addisonsdisease #endosisters #addisonsdiseaseawareness #mentalhealthawareness #bpdwarrior (at United Kingdom) https://www.instagram.com/p/CfXPLWyrY6k/?igshid=NGJjMDIxMWI=

I saw this and I had to share as it's been about a month since my diagnosis of Addisons Disease and it has been a struggle but last Thursday I ended up getting Tonsillitis (typically over the bank holiday weekend when the drs were shut but when I finally got an appointment is when I realised that now just having Tonsillitis isn't just having Tonsillitis anymore. . . So let me explain why! And not only why I feel I need to create awareness not to just "normal" people but also to medical professionals!! As the one I saw had absolutely no clue about Addisons and clearly neither did the on call Dr 😱 . . So after the Dr said I had Tonsillitis I said to her I have Addisons Disease and she looked at me like I had just slapped her across the face 😂 (no joke) and I said do I need to take a double dose of my steroids once again she looked at me in confusion 😳 and said I will check with the on call Dr. The on call Dr said no stay with the same dosage! THIS IS INCORRECT INFORMATION AND COULD HAVE SENT MY BODY INTO CRISIS!! . . Luckily I remembered the nurse mentioning about sick day rules so I asked in a support group I'm in and they was so annoyed I was told that as I would of ended up in hospital. Then a friend who also has Addisons Disease quickly messaged me to say I must double dose for the whole course of antibiotics as the dose we originally take is only enough for our bodies to function and isn't enough for our bodies to fight an infection or handle any kind of stress so my body would of ended up in crisis and I would of ended up in crisis or dead! This is why medical professionals should know more about it and more funding needs putting into research! So I am determined to make more awareness for this Disease. . . 💙💙 . . . . . . . . . . #relatablecontent #chronicillnesshumor #chronicallyfabulous #sickchick #sickaf #chronicbadass #chronicallyawsome #invisbleillnessawareness #healthmemes #symptoms #spoonielife #chroniclife #sicklife #disabledlife #endometriosis #invisbleillnesswarrior #addisonsdisease #endometriosisuk #millionsmissing #chronicpainwarrior #addisonsdiseaseawareness #chronicillnesslife #chronicillnesscommunity #spooniecommunity (at West Yorkshire) https://www.instagram.com/p/Ceqfb3-LxFZ/?igshid=NGJjMDIxMWI=