Telling people with ME to exercise is so dangerous and I am not kidding when I say you need to get off your high horse of being a better disabled person all because you still are physically able to exercise. Do not give out advice that can literally kill people, especially with severe-very severe ME. And making videos shouting “if you don’t exercise, and you “let yourself lay in bed all day” and decondition you’re never going to get better!!!” all in the same fucking breath what is WRONG with you? Literally what is wrong with these people who have a taste of being sick and just think “ah, surely this one thing that has not cured anyone with ME/CFS ever is necessary and fundamental to YOU succeeding!” wtf??
“I have ME/CFS, the thing that helps me more than anything is exercise. I do get PEM, but I plan for it. If I go run(?!) or exercise, then I come home and shower then lay down in my room for about 30 minutes with the light off” is one of the most ridiculous things I’ve heard about ME and that’s saying something. PEM is not “after a run and a shower, I lay down for 30 minutes in the dark and I’m better” fuck out of here
No person with ME just “lets themselves” be stuck in bed. I “let myself be stuck in bed” so I definitely deserved the bed sores I got when I was too weak to be able to move my body to switch positions.
Also being bedbound isn’t for when you’re sick with a common cold or stomach flu. You can still get out of bed to go die in the bathroom and come back and repeat. It is not the same. And it certainly isn’t a choice. You want to be us so badly and yet you hate everything to do with us. It’s fucking weird.
what is PEM?
what is PEM?
