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Hi hi! I just wanted to check in and ask, I tend to like a lot of posts as both a nod that I saw it and agreement or anything, I just wanted to check, does it bother you if/when I like posts like the YouTube comment-ableism one? Bc I will definitely not if not, just, wanted to check ! Sorry, hi :3
Hi! c: it doesn't bother me at all, you're fine. thank you for asking!
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Hi there (: I'm so so so sorry to bother you but I'm sooooo confused -- I've seen a lot of people say EDS Type III and JHS but there's no definitive answer on whether they're the same? And I think I fit with the symptoms but it's still confusing and difficult n stuff :/ Sorry to bother you, I just wanted to thank you so much for making the resource master post and hopefully this isn't a problem or rude or anything :7 So thank you and I hope this is alright! :1
of course it’s not being rude :) I’m happy to try and help.Â
Short answer: ok, so in my (nonprofessional opinion) it really doesn’t matter
the diagnostic criteria cannot distinguish between the two syndromes, and are often used interchangeably anyway (the Brighton criteria, developed for JHS are being used more and more for EDS)
the treatment is exactly the same
the list of accepted symptoms and secondary disorders is virtually the same
a study showed the collagen had the same weird errors in both types (they can’t be distinguished under a microscope)
the same study also showed that family members of people with EDS III who don’t meet the current criteria for EDS often do meet criteria for JHS. This supports the idea that it’s the same gene, just expressing differently in different family members
there are already a bunch of genes associated with hypermobility type (although accounting for just a small percentage of cases) so it’s not like just one gene covers the entire hypermobility type anyway
the two are used together or interchangeably in all kinds of studies and resource material, so it’s hard to even get specific information about the two
I think the vast majority of doctors writing about this stuff agree they are the same thing, and agree that a new set of diagnostic criteria should be created. This will probably happen during the 2016 international symposium. Or maybe they will shock everyone and create two separate types, with more distinguishable diagnostic criteria. But until either of those things happen it honestly just doesn’t matter. I tend to use EDS instead of JHS because it’s taken much more seriously, and because I may have a mild classical type instead. But it really doesn’t change much at this pointÂ
1, 3, 11 (:
if someone wanted to really understand you, what would they read, watch, and listen to?
Read: Daughter of Smoke and Bone
Watch: Daredevil or Pacific Rim
Listen to: Movie soundtracks and broadway showtunes (esp gglam & newsies)
list your fandoms and one character from each that you identify with.
Daredevil: Foggy Nelson
MCU: Skinny!Steve
Sherlock: Greg Lestrade
Daughter of Smoke and Bone: Liraz
Newsies: Crutchie
GGLAM: Phoebe D’Ysquith
describe your ideal day.
museum-hopping, basically getting to see a couple exhibits each from a lot of museums. preferrably art & history museums, but i love all museums/exhibitions. breakfast at a cute coffeeshop, lunch at a nice cafe (out of the way and not super crowded), and dinner at a restaurant near a waterfront (any pretty waterfront, i’m not picky)
Send me a number or two (or a few)?
@agloriousgeek I made myself dinner and spent some time with my dog. I’m doing better and I’m gonna skype call a friend. Thanks for worrying :)
Hello ") I just wanted to like check in and stuff, because I'm not Jewish but I really do like your blog and you and all, so I just wanted to see if it was cool for me to still follow. I'm not antizionist (I think?) though I don't support what's going on in Palestine and on the Gaza Strip, but like I'm sure there's Zionism outside of that and it sounds like a really understandable and good thing to want bc of the diaspora? I hope this comes across friendly/honest, I don't want to be The Worst.
Yeah, you’re fine. Zionism is at its core the support for a Jewish homeland, and it’s entirely possible to separate that support from support of the current Israeli government.Â
As an example, I myself am Zionist, but I find Netanyahu’s actions reprehensible and do not endorse the actions of the government of Israel in any way, shape or form. The atrocities need to stop immediately, and reparations/aid should be made available to Palestinians.
Don’t worry, friendo, I definitely understand where you’re coming from and you definitely didn’t come off as The Worst at all!
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
When you get this ask, post 5 things that make you happy then pass it on to the last 10 people who reblogged you
1. Flowers2. Music3. Sewing4. Seeing my friends5. Dressing up (make up and nails and all)Â
Hey there, I haven't read the play in a while but I remember being super uncomfortable and really hating Troy, he's kind of a terrifying character, especially to his kid and his wife and his brother. Like... yeah. You're not imagining it, it's definitely a thing, a horrible, awful thing. So sorry you're being triggered by it, I hope you can be done with it soon <3
thank you so much for your kind words! i was scared i was being irrational and blowing it out of proportion or even just imagining it, and that doubt was making everything ten times worse, so having someone acknowledge it is really helpful bc then i'm not doubting myself!
Katie is asleep next to me, and she just opened her eyes, pointed at the wall, and said "YOUR FACE" before passing out again- I can't handle this I'm laughing too hard she's so cute help
