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My girlfriend suffers from epilepsy due to her mom being on drugs while in her womb. We are two young women with regular jobs. Trying to pay the bills that we already have to pay .

On March 4th , 2019 Serenity has 3 seizures back to back I called the ambulance they rushed her to ER . We can’t afford insurance at time so it wasn’t much they could do. They gave her a prescription called (LEVETIRACETAM) witch cost $147 out of pocket. The next day she had an Allergic reaction from the medicine she was Prescribed. She wasn’t breathing right, shaking, and Hallucinating. I called the ER again, we got to the hospital and they told me they were glad I came as soon as I did because she was having a reaction to the medicine. They Prescribed her a new medication called (VIMPAT) we took it the pharmacy and the total of the $800. Its a medication she really needs to help with her seizures. If it’s possible in any way anyone can help us out would be thankful

My PayPal is : paypal.me/tieneicialacole

Cash app : $Tieneicia

Your feeding tube has not made you ugly.

Your ostomy has not made you ugly

Your cane has not made you ugly

Your wheelchair has not made you ugly

Your oxygen has not made you ugly

Your wig/your bald head has not made you ugly

Your teeth or lack of has not made you ugly

Your body has not made you ugly

Your medications has not made you ugly

Your rashes, blemishes, scars and bruises has not made you ugly

Not being able to shower has not made you ugly

Flashbacks and paranoia has not made you ugly

Changes in your body and brain has not made you ugly

Having seizures has not made you ugly

Your trauma, depression and anxiety has not made you ugly

Your hallucinations, brain fog, and confusion has not made you ugly

Your lack of control over your body, brain, mood and life has not made you ugly.

Please never feel ashamed or ugly about what your illness has done to you, no matter what it has changed it can not change the beauty that you have, so even if you feel like youre not beautiful right now, please remember,

In my EpileptiCon 2018 announcement post, I mentioned that I would provide some incentive to participate in the festivities. Well, here it is:

This is an Epilepsy Travel Pack! It is designed to help meet your needs as a epileptic when you hit the road. Before I get to the contest rules, let’s talk about what’s inside.

A backpack. This backpack is manufactured by Columbia, a brand of high-end outdoor camping gear. I own some of their stuff; it’s high quality and worth the money. I dwelt on this decision for months and researched dozens of backpacks and travel bags before settling on this one. There are more fashionable and/or gimmicky bags out there, but I wanted something durable. I’m confident that you could drive a car over this bag a few times and it would be fine.

Coloring book. @the-twitchy-life recommended this to me. It’s a coloring book for adults, meant to help reduce stress. You’ll have to buy your own pencils/crayons; I’m not going to tell you what colors to use.

Pill case. This is an eight-compartment container mounted inside a fabric case. The compartments are labeled by day of the week, and there is a space for a card of some sort inside.

A stuffed animal. Don’t pretend like you’re too old to enjoy cuddling a cute baby deer. It’s a little on the small side but considering that this is a travel pack, I felt it a good idea to not be too ambitious with my stuffed animal.

Socks. You might be under the impression that the bag is the centerpiece of this giveaway, but it is not. These socks are the big draw, because they read “FUCK OFF” on the soles. I know that socks aren’t really directly related to the theme of “travel,” but they really suit my overall message as an epilepsy blogger.

A sleeping mask and earplugs. @the-twitchy-life suggested this to me. It’s not always dark and quiet when you need it to be. Maybe you need to catch a nap, maybe you’re experiencing sensory overload and need to shut everything out. Hopefully this will help.

Snacks. Not the fun kind, the helpful kind. These are gluten and dairy-free energy-boosting snacks from the hippie store. Navigating the hippie store and its goods is a challenge for me. When I went in they had “vintage soap” on a rack near the door. I don’t know what that means. How can soap be vintage? Is it old? Did someone find it in storage somewhere? Anyway I just bought these snacks and got out of there as quickly as possible.

A pillbox fob and key clip. I use one of these to carry around my emergency anticonvulsants with me wherever I go. This one is water-resistant with a rubber seal. You can unscrew it, drop your pill(s) in there with a little padding (I use a little tissue), and you go. Carrying some spare meds around with you in a small, discrete container will reduce the chances that you wind up somewhere without your pills when you need them. There is an x-factor here: just knowing that they are always on hand is reassuring in times of trouble.

A 32 oz. water bottle. I’ve been using a Nalgene water bottle on a daily basis for more than ten years. They’re tough and durable, and when full, have enough weight to be used as a club. 

OTC meds. A travel vial of Advil, Emergen-C powdered vitamin supplement, and Sea-Band anti-nausea ginger chews. A support staff for your AED crew, if you will.

A “F*CK EPILEPSY” patch. I don’t know if you have a use for a patch. I certainly don’t. But this patch has my message written all over so I’m including it in the travel pack.

HOW TO ENTER:

Let me be perfectly clear about something: this giveaway is not a promotion for my blog. It’s not about getting notes or increasing my follower count. You don’t have to follow me or reblog this post to win. I have one objective, and that is to provide incentive for the epilepsy community’s participation in EpileptiCon 2018. That being said, I am treating my giveaway like a raffle. Here’s what to do:

1. This contest is exclusively for people who have epilepsy.

However, we’re on the honor system here, because I will not for one second ask for proof of a diagnosis because that would be creepy and intrusive no matter the circumstances.

Understand this: you’re looking at about eleven hours of my life here. This is time I sold to an employer for whom I perform life-risking work. I did this mainly to pay bills and not starve to death on the streets, but that’s also how I got the money to buy this stuff. I desperately want to give people who have epilepsy something just for them to be excited about. I want us to be able to have fun together for just ONE week. So if you do not have epilepsy, sit this one out.

2. Make posts here on Tumblr that pertain to epilepsy.

Participate in EpileptiCon by contributing posts to the event, running from November 1st through November 7th. Tell stories, draw shitty comics, lash out in a furious burst of rage, write a poem, shitpost every ridiculous epilepsy-related idea that pops into your head. If you need ideas for what to write about, I will be providing suggestions daily. Most of them are terrible, but I’ll do my best to inspire.

3. Tag your posts with #epilepticon.

I will also watch #epilepsy, #actually epileptic, and the other epilepsy-related tags. If for some reason your posts don’t show up in the tag (which did happen last year) you can also tag my url. If you don’t want to have it on your blog, for one reason or another, submit your post to myself or @the-twitchy-life, who cofounded EpileptiCon with me. The bottom line is that I need to see it one way or another!

I will assign a number to every post, and when EpileptiCon 2018 concludes, I’ll run it through Google’s Random Number Generator to pick a winner. The more posts you make means more chances to win. 

Bear in mind that winning the EpileptiCon 2018 Giveaway does mean that you will have to provide me, an Internet stranger, with a mailing address. If you’re not comfortable with that, I hope you will participate anyway, just for fun. Just give me a heads up so I don’t put a number on your posts.

I hope to see at least a modest amount of participation, because as you might have noticed, all this stuff is purple, as that is the official color of epilepsy awareness. But guess what? I fucking HATE purple. I am not keeping this stuff for myself. So take it off my hands, won’t you?

Tagging the other epilepsy blogs to spread the word:

halloween is fast approaching, and sending screamers has become an increasingly popular trend over the past few years. while some people may enjoy them, they can also trigger anxiety attacks in others.

check the section/category of a video. if it’s under “comedy”, “prank”, “horror”, or something similar, close the tab immediately.

comments are also a giveaway. scroll to the comments section before playing a video. if comments are disabled, there’s a likely chance the video is a screamer. close the tab right away. if you see comments like “whoa, that made me jump!”, close the window! and if it’s impossible to disable comments, look for multiple comments deleted by the creator.

check out the video itself, while it’s paused. if it has very low music (this makes the audience want to turn the volume up, so the scream is louder and scarier), or if it has very small text (which makes you want to go into full screen), that’s a good indication that it’s a screamer. exit out and close the tab!

look at the content of the video. if the clip itself deals with the scary or supernatural, like a film about ghosts, you can’t be certain. be careful, and exit the tab if the content seems triggering. pause the video and forward all the way to the end. If everything is good feel free to watch. if a frame with a scary picture comes up, close the tab immediately.

if the video shows a room or picture, and invites you to “find what’s wrong in the picture”, or “find _____”, close the window immediately! 

there’s a new trend going on where videos describing people reacting to screamers are actually screamers themselves. if you suspect this, scroll down and see the comments. if the maker of the video disabled comments to purposely lead viewers to believe the video is genuine, scroll down just enough to see the video time, so you don’t see the video itself. Turn the volume down, just in case it is a screamer, and if the video plays out and there’s no scream, it’s safe to watch.

check the time on the video. if it’s suspiciously short, exit the tab.

look at the related or recommended videos. if any of them fit the above, the video is a screamer.

@the-twitchy-life @justepilepsy @dont-look-at-the-lights @purplesmartass @beppilepsy @letterstomyepilepsy @brainbuffering @epilepsysupport