Cookie’s Blog

I blinged up my walking stick...😇😅

I was so fed up with a plain walking stick that didn’t reflect my personality ! 💎

While using this stick, I have noticed that people find it a lot easier to approach me. They ask me if I decorated it myself and how many diamanté’s are on it (There is 6000) 😅 I also don’t get the “Why do you use a stick?” Question right away, which is refreshing although I don’t mind educating people about my complex conditions when they ask😇.

I had a bad pots episode at the doctors on the 26th of Sept, the last place I expected to be was on the floor 😂🤷‍♀️. I only had to pick up a letter but then I felt tachy & potsie and my limbs were blood pooling. I was shaking a lot and my breathing was all over the place. My doctors surgery were very good with me. I’m so grateful. These cards by Stickman Communications were an absolute save. While I was on the floor I showed them the cards which helped the nurses and doctors understand what was going on and it saved me the trouble of simplifying my conditions.

Hello Everyone 👋

This is my first blog post so please be patient with me 😅.

I wanted to share my collection of items that help me with my Heat Intolerance. I have Dysautonomia, the doctors are sure it’s POTS. This is another comorbidity of Ehlers-Danlos Syndrome ( I have hEDS). I can’t regulate my body temperature, it doesn’t take a lot for me to become very hot.

These items here have helped me cool down and stabilise my body temperature.

Cool snap towel - This can be purchased at Amazon, Sports direct, eBay. Wet the towel and place it in the fridge for a super cool towel.

Hand-held fan with water mist spray - I purchased this from Amazon. It was suggested by another spoonie.

Aircon and tower fan - We purchased the tower fan a few years ago from Argos but you can get some similar ones from Amazon, E-Bay and other shops. My dad bought me the aircon a year ago, it does eat up the electric bill but it has helped me so much.

Cooling mat - Another purchase from Amazon. It has been one of the BEST purchases. It is quite heavy so please be careful but it has kept me cool all throughout the night. 

Magicool - A quick cooling relief. I found this one in Tesco but you can purchase these in Boots and Superdrug. Very popular on the shelves during the summer season. 

(The communication cards are from StickMan Communications. The card has helped me explain my symptoms)