main acct is @cytochrome-sea!! this is where i post aac stuff i hope something good happens to you today! pfp is a drawing i did of a blue and white border collie holding a pink AAC in its mouth with a rainbow behind it.
Hi! Welcome to my blog! My name is Chrome, and if i am the only AAC user you know, you don't know enough AAC users
i'm in my 20s and my pronouns are it/pup/the dog or he/they.
This is my blog to talk about AAC. I am a full time AAC user and taught my self to use it.
I love asks but i can only answer from my experience. Please check out my FAQ at the bottom of this post as i may have answered your question already and you can get your answer faster!
also , please take the time to google something at least once before asking me! again, you may get your answer a lot faster, and it hurts my feelings when yall treat me like a search engine.
I do not have a DNI on this blog. if *i* break your DNI and you reblog from me i will just block you. per my main, sysmedicalism, bigotry and harm towards others will be sent headfirst into the void.
I hope something good happens to you today!
@cytochrome-symbolz AAC symbol blog open to anyone.
@cytochrome-sea Main blog
stuff about me and FAQ under the cut:
Please Note:
i am not only disabled by autism! i have schizophrenia and several other mental illnesses.
i am not high support needs. i am speaking from a relative place of privilege regarding my disabilities and am not a representative of all AAC users OR autistic people. i am white, and not physically disabled. again, if i am the only AAC user you know, you don't know enough AAC users!
please learn about the experiences of racialized autistic people, higher support needs autistics, and people who use AAC because of a different reason than autism.
the syntax and grammar of my posts may change depending on whether or not i am using a keyboard or my symbol based AAC to write posts. i usually go for the keyboard but not always. if that bugs you, i would ask you to try writing a single sentence with a symbol based AAC app before you pass judgement.
this blog is a very small window into my life. you don't know me as well as you think you do if you only know me from tumblr (or instagram). there is a lot of my life that i do not post about on social media. many people have tried to judge me based only on this blog and my instagram account. it does not go well for them.
i am a real person who sees your reblogs and comments and reposts. please consider your audience. that being said, i love being tagged, sent silly asks, etc!
FAQ:
can i use AAC if [reason] -> yes. for any reason, even if not related to difficulty speaking. AAC is not a limited resource that is taken away from people who need it. anyone can use it. it's not disrespectful unless you are using it to deliberately hurt someone (i do not even know how you would do that though)
what do i say instead of going nonverbal? -> some (not all) alternative terms to âgoing nonverbalâ are: speech loss, speech loss episode, words offline, vocal rest, verbal shutdown, verbal rest
i don't know if i should send chrome an ask. here's a flow chart to tell you!
other questions i get:
do you have a list of free AAC apps? (check comments) (ask)
on "going nonverbal"
how do you set up a symbol based AAC grid (ask)
What is AAC? -> AAC awareness month 2024 mini zine
how can i get more comfy with using AAC? (ask)
my experience with having a developmental disability and a severe mental illness (post)
how i lost my voice (i may remake this post soon as the formatting is not accessible, which was my fault. it does have an image description tho)
if you can read and spell and type, why use symbol based AAC? (ask)
my sunflower lanyard (ask)
other favorite posts:
7-11 speaks louder than words (comic)
happy AAC awareness month 2025 (post)
what catatonia is like for me
MEGA ULTRA shoutout to @/dustbunnyaac for the adorable banner
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My new communication book is finished enough to share :) last step is just adding a clear cover with snaps that connect to the last page (so it's easy to keep closed/safe).
When I was using my last book I realized I was flipping between words and the keyboard very often, so when it broke and I had to make a new one I knew I wanted to make it easier to switch between the two. This is my solution.
It's also a little hard to tell but the tabs are a lot sturdier because I kept the lamination for each tab under the tabs above it - kind of like a staircase.
We got proloqou2go and just want to see others pagesets (and yours looks really cool!)
yes i can! please note that my boards are brightly colored for my own help to remember but its not easy on the eyes so cw eyestrain if you hit the read more
cw eyestrain
these arenât the only boards i have, just the ones im comfy sharing right now.
umm sorry if too personal but if you don't mind me asking, what was it like for you developing schizophrenia?
I'm going to uni in September to study biology and stuff but started noticing weird episodes where:
â˘Very terrified in own home at night. And even sometimes during day but that less often
â˘Hear and see things that aren't there (don't hear voices. just like footsteps and doors opening and closing)
â˘Believe something that recognise after episode ends was absolute nonsense
â˘Body feel different each time look at it
Episodes like that have been happening for a while and last 4-8 months roughly and like, I can live with that but noticed other stuff too
â˘Words harder to get out. And switch words that completely random
â˘Memory now useless for short term (it used to be bad (because ADHD) but functional whereas now it's basically obsolete) so lose all pairs of keys and can't remember entire days
â˘See and hear things more vividly during episode
â˘At one point world just not feel real at all
Doubt it schizophrenia but sort of want to check it not something need be worried about
big takeaway: as it pertains to your health, anon: psychosis isn't always indicative of a mental illness. it can be caused by vitamin deficiencies, infections, etc etc. your doctor may order a lab test to check for things that may be amiss, even an mri, something like that.
so , i wanna preface this that doctors still don't know if i have schizophrenia or not. currently the consensus is "no" but im taking medication that is only approved for schizophrenia and i don't know if my insurance covers it without a schizophrenia diagnosis.
my parents don't think i have it. they think i have autistic catatonia + stress induced psychosis. its really a toss up right now. i personally identify with a lot of the schizospec community in how my brain processes things thats markedly different than how i used to before.
anyway, this is my *personal* experience. its not a benchmark for everyone. just maybe something you can find peace in. i hope.
however, my first psychotic experiences in childhood
hereing my grandfather's voice (then others voices) from inside my head
my first psychotic episode:
while i was driving, the floor fell away from my feet (not really but it felt like it)
i could tell the car behind me was a destroying angel and was trying to kill me.
i just kept crying and telling my partner at the time in the passenger seat i loved them because i thought we were going to die
later in the drive i saw a different car that had my mother's face in it, and i knew it was a protector angel and i would not be harmed, but i was still frightened.
over the next couple weeks, i would have frantic crying spells where i would believe some item was watching me, or had been imbued with the destroyers. sometime in those next weeks, i realized i was an angel, and that was why angels were coming for me. i hadn't been doing my job as an angel and needed to do it otherwise they would kill me. at that time, destroyers would usually take the form of streetlight angels. i would hear them crawling on my balcony.
currently, my hallucinations involve a visual ripple and rainbow-y filter over everything i see. i see a lot of animals out of the corners of my eyes, and i don;t like driving anymore because i hallucination people on the side of the street. i feel bugs on my skin. i have painful transformations where my body turns into a dog body. there are still angels trasnmitting my thoughts to heaven and they keep trying to get me to hurt myself or kill myself so they can put me back in heaven and remake me perfect this time .
i quickly started having more trouble in school, thought it was 'just' burnout at the time (in 2023) but when i dropped out of college the first time and went to a PHP when i came back to college after that, i could tell something was really wrong. i was still having psychosis , especially if i forgot my meds, i lost speech much more frequently, could not focus to save my life, couldn't remember anything i was learning in school and forgot whole protocols in lab. this progressed into me not being able to take care of myself and dropping out again. i started having catatonic episodes in summer of 2024 and they've been slowly getting more intense , but im on a lot of benzos right now to stop it and it seems to be working for the catatonia, but nothing else.
however, professionals have argued that because my decline was slow, not all at once, and that i maintain pretty good insight about when im experiencing psychosis, the cognitive stuff is more attributed it to autistic catatonia than schizophrenia. im not convinced tho, because after about six months of working with me, every single professional has been like, this has to be schizophrenia. but simultaneously the experts on schizospec disorders in my state insisted i was not schizophrenic. also, my care team will refer to experiences im having that i thought were consensus reality as psychotic, or refer to a fear i have as paranoia, so i kinda think people are withholding information again. which makes me mad but these are the best care team i ever had so far as in they respect me and past teams not.
im trialling cobenfy right now, and im hoping its going to help my confusion and disorganized everything. i dont think it is tho. if this doesn't work, im afraid i will have to go on klozralil, or clozapine or whatever its called.
either way, what you're going through sounds scary and difficult, and i hope you get the support you need. i hope your studies go well and that you find as much joy and beauty in the study of life as i did.
i hope something good happens to you today,
chrome
ps - so sorry if this is jumbled, i knew i had to write it all in one go and post or i would forget about it.
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im not sure if this has already been asked but I am wondering what model tablet you use for your AAC (From what ive seen you use a tablet, please forgive me if im wrong)? I have been looking up and doing personal research on tablets and such but id like to know from people who actually use these tablets and such!
i donât believe it has been asked before!
i use a 10th gen ipad with wifi access but no cellular data. i bought it in november of 2023 and was able to write it off as a school expense as i was planning on using it to take notes for college, and i also recommend that because itâs way easier to take notes directly on the pdf slideshow that your profs give out. i bought it for 750 USD at the time.
so far it has stood up to daily use and abuse with the help of a thick case and screen protector. i know that as all apple products have planned obsolescence, i should start thinking about a dedicated SGD like a grid pad or TD pretty damn soon, but for now, spirit is alive and kicking. the battery life is still pretty good.
my only gripe is i wish it was louder, even at full volume itâs the same as a regular conversation volume. it would be a bit louder without the chunky case but iâm not willing to sacrifice the safety.
i also use my ipad primarily to take notes with notability, usually journaling or writing guitar tabs, and procreate , which i use for all digital art. i also use it to watch videos on youtube, but not much else.
everything just take so much words. talking w words writing with words thinking with words reading words remembering w words record it down with words. like most any sort of communication with others or self past present future need words n simply. not have them it so exhausting it drain so quick
this abt nonverbality this abt language disabilities this abt how that by itself be absolutely exhausting n draining this abt how that complex interact w energy limiting disabilities this about about about
i havenât been super active on this blog even tho a lot of stuff with aac including editing p2g, experience with using high tech while inpatient , stuff like that , but the goal of blog has always been to show that even tho itâs hard if i share what im up against no one else has to feel alone. but i donât even know how to explain whatâs happening any more:
there have been many changes in attitudes in my inner circle , about autism , about schizophrenia, about accommodation. i donât want this blog to become a vent blog (even tho i think disabiled people get to complain abt disability stuff as much as they want) , and , i also donât know how to put stuff into words about what is changing.
i still canât talk, still psychosis, still barely clean my self. very tired lolz, not been able to support my friends the way i used to . words are hard even with aac but i do love proloquo2go better than coughdrop . i need some caffeine. i keep losing skills, and cant really drive or cook any more.
rapidbly approaching 19 months without words.
much love, i hope something good happens to you today
chrome
tl dr not going away just not enough words to explain right now
iâm sorry, i donât think the post i wrote about being visibly developmentally and psychologically disabled is actually about blorbos. iâm happy for you that you see something that brings you joy in many many things, but this was definitely an inside thought because the post was about real peopleâs experiences, not fiction. i hope something good happens to you today.
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aac joy is rocky!! like how rocky speak and rocky tone and inflection and how emphasise by repeats words and sounds like aac!! like how rocky accepted and listen to and not patronise or told "speak correctly" and like how rocky rocky self :DD
want speak like rocky!! like how rocky accepted!! likes aac more :DD personal communication feels valid and worth using :))
(some) accommodations for âneurodivergentâ people (rly just certain presentations of low support needs autism ADHD) be use as cop out accommodations by service providers, businesses, organizers, establishment, events, etc.
it be generally low cost, low effort, n low accountability form of accommodation that providers use to meet buzzword âdisability inclusiveâ n get kudos for that, while use as excuse not need to accommodate for disabled people who need accommodation that need more effort or bigger / fundamental changes to what they doing. e.g. many physically disabled people, especially wheelchair users, high support needs neurodivergent people, n honestly sometimes even lower support needs neurodivergent people with different needs.
these accommodations typically one of two category:
1) objects that little to no cost to get (can often buy for cheap cost or in bulk) and little to no effort in implement (you literally hand to neurodivergent person)
this be like stim toys, sometimes ear defenders, etc.
at best, may lower music volume, dim lights, but many times not even that.
this may be helpful for people who not allowed buy stim toys, forgot stim toys, or try out new types, but personally never found these helpful n always kind of confused me because many neurodivergent ppl am know who regularly use n need stim toys & noise cancelling⌠literally bring their own.
interestingly, portable ramps technically be same in this way compared to some other ways make buildings be physically accessible to physically disabled ppl & wheelchair users (widening doors, remodel to get rid of stairs, build permanent ramp, etc). but it be nowhere near frequent âgive stim toy.â they ARE more expensive than stim toys (can buy like a LOT of them online for like 30 dollars), but still. think it still speak to how (some look of) neurodivergence vs physical disabilities treated.
(be told âwe be fully accessible but do have few steps get in but we can carry you in / come find us inside n we bring out portable ramp for youâ be FREQUENT experience for wheelchair users, but would⌠not call that accessibility. at least stim toys & ear defenders here be actual tools n aids n accommodations that help.)
2. conceptual things with little to no guide on how they be achieved, how to assess they succeed or fail, or accountability in general.
e.g saying âcan be yourself with usâ âstim freelyâ âwe not judgeâ
which. donât get wrong - great concepts. should be Thing. but often time it stop there at concept and slogan and words.
and many times, these not even true in action, or only selectively true to most pallatable n most privileged. many times âbe yourselfâ mean certain type of self, stim freely be certain type of stim (cute, quiet, or occasional cute ânon threateningâ noises, small actions, ignorable, etc.), many times do judge, sometimes visibly. promise words =/= actions.
for example, neurodivergent people of color, especially black neurodivergent people, can be seen as more threatening even if do same thing as white neurodivergent person⌠or nothing at all. higher support needs autistic etc people who cannot control stim, constant stim, loud stim, so called âdisgustingâ stim, groan moan big full body movements, etc., or public meltdown of any type but especially the loud n stereotypical n âuglyâ type.
versus. many access needs of physically disabled people need concrete physical things & cannot even be pretended be solved with virtual signaling. you cannot slogan your way into suddenly summon ramp (⌠though many people do try virtual signal their way thru âaccommodatingâ wheelchair users, as talked above)
you rarely hear âwe accept people with medical devices!â be big advertised Slogan Thing. ⌠plus, people often gross out or somehow inconvenienced by it anyway, or stare - especially stuff like ostomy bag, catheter bag, or honestly like anything with stoma, n also life sustaining medical devices that beep once in while (⌠so annoying people or âtrigger someone sensory issuesâ n somehow put on same level of access needs.)
wheelchair users require ramp or otherwise physically accessible entrance to even get in, to even have chance see if it accessible inside, to even have chance see if it accommodating to their neurodivergence they may have. some people have bulky 300+lb wheelchairs n some are nonambulatory, there be no âforce tolerating the discomfortâ of no ramp to get in. people with life sustaining medical equipments need those equipments to⌠well. stay alive, n some of them cannot be disconnected for even few seconds or else will die or physically impossible remove without surgery.
cannot count how many times places have said they âdisability accessibleâ n only for wheelchair users n other disabled people with needs that require bigger effort accommodations, to find out they actually have âjust a fewâ steps to front door, no accessible bathroom, etc, by advertise self as disability friendly n accessible they mean they keep stim toys. or more visibly developmentally disabled people not be invited back, be kicked out, be not invited at all, be banned from enter, refuse service, bc people discover they not type of cute convenient neurodivergents who only need stim toys as accommodations. THAT is cop out.
question, if its ok. use crutches for when i'm walking more than a few minutes. which means hard to use aac because limited use of hands. do you have communication suggestions?
sorry if my words are weird. not a lot of words right now
No worries with your words, I get you just fine :) and I am always happy to answer questions
When I use my crutches and my AAC I have a few strategies:
I lean on one crutch by steadying my hand in the cuff, and use that hand to hold my AAC, then I type with the other.
Symbol based is hugely helpful if you can do it fast because it means less hits to say more. I typically use my phrase based set ups when I use my crutches for this reason.
Cases with a fabric strap on the back are also helpful for this !
This also means I can't walk and speak at the same time. No fixes for that I'm afraid.
I know some folks also do well with a front facing chest harness to hold their AAC. Something like this. Or also like this. It keeps it closer and easier for you to reach.
If you have a sewing machine and about intermediate knowledge you should be able to make one yourself too :) and if you don't have either most libraries with maker spaces have sewing machines and the best time to learn a new skill is as soon as you can start.
(they're mainly nylon straps + a parachute buckle + an O ring or square ring if you wanna get fancy with it, adjustable belt buckle if you wanna make it adjustable, add straps on it with two extra mini parachute buckles that match a strap on your case and you're all set.)
I've also heard chest harnesses can be a lot less overstimulating than having a device tap your hip all the time in case that's something relevant to you too.
Based on this post by @chrome-barkz-aac (I hope you're okay with being tagged) and my own ideas, I present to you, aac user Ryland Grace!
Featuring 3 types of aac. High tech tablet, communication cards, and a word/letter board!
Sorry for the bad photo quality. Alternate versions below
Versions with no stars, plain white background, and origional sketches
I can't do image descriptions right now due to low spoons, if anyone wants to add them you're more than welcome. If not I'll come back and add them later
OMG I LOVE THIS SO MUCH. THIS IS AMAZE AMAZE AMAZE
thank you SO much for thinking of me and drawing this!
for the record, iâm always ok being tagged !
image description: 3 of same digital drawings in a cartoon style, one has a blue background one has a white background and one has a blue background with stars. it features ryland grace, a man with short blond hair, blond stubble, light skin and black earrings and square glasses, and rocky, a creature that looks like a rock with rock legs. in the first sketch, grace is wearing a white shirt, a black binder underneath, black pants and kandi and rainbow socks, and holds a teal aac tablet with space stickers on it. in the second, grace wears an orange shirt and kandi and holds a ânoâ communication card. in the last drawing, grace points to a letter on a tactile letter board while rocky looks at what heâs pointing to. end ID.
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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yes I love wings with hot sauce. yes I need my paws clean to use AAC. this keeps me humble because otherwise I can talk with my mouth full, which most people can not do. it is an elegant balance. you understand.