Jan 18, 2025
I'm sure this is great but you won't prise the diet coke and coffee from my cold, dead hands, diabetes impacts me enough 😂
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I'm sure this is great but you won't prise the diet coke and coffee from my cold, dead hands, diabetes impacts me enough 😂
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Made it to 18:33 2nd January 2024 before my first occlusion alert of the year 👌
Anyone in the diabetes community able to help with a dexcom issue? I'm running my alerts through x-drip ATM because they don't seem to be pinging properly. Sometimes are but it's only a one-off noise, most often it's only a single vibrate, sometimes they aren't showing at all (I was high for 4 hours the other night, didn't get an alert until two hours out of range, then obvs sugars were messed up for the entire day because of it after it took another 2 to drop down - and TBF highs aren't really that much of a worry, I don't want to miss hypos). I'm definitely not going to wake up for a weak vibrate, and I will probably (and probably have) just turn a single noise off and do nothing about it. I basically need the equivalent of an air raid siren to respond.
I've taken my phone off do not disturb and (the horror) put it on loud. Dexcom is set to always override so that shouldn't have mattered anyway but obvs now running the risk of being woken up 20x a night by alerts from other, usually silenced, apps. Tried turning all my other alerts off but it was painstaking and I still managed to miss a load (then fucked up my whatsapp in the process!)
I'm happy to continue running x-drip (though have some concerns about how well it's picking up the data/delays) but just wondering how everyone else manages? Is there a specific ring tone that keeps going? When you click okay on the alert does that make it go away forever? Should I be swiping to snooze? Like what the hell am I doing wrong?
Nothing I do seems to make the slightest bit of difference and it's very frustrating considering people have been raving about the system for years! Can't go back to libre because I need it for closed loop.
Also, on the subject, my x-drip gives me a numeric value in the top bar where dexcom is just a symbol and you have to expand to see the number. Any way dexcom does that? Should I just stop whinging and keep running x-drip because I know I like it? Lmao.
Just checked my stats for the last 30 days (I had a phone malfunction and had to switch software, bane of my life) and, incredibly, my hypo rate is currently 3% compared to the 10-15% it has been in the past WITH a normal hba1c. I've had for some time now almost the opposite issue to people who are terrified of hypos where I've never really taken them seriously enough because in my mind I'm worried about long term complications of highs. Because I'm always hypo aware and I've never had a "serious" one (in 20 years, I know, good going) I've never really worried about them that much, which is totally the wrong way to deal with things. As a result of this I've put on a lot of weight and it's been absolutely impossible to shift it (well it would be if you're chugging 2L of lucozade a day, wouldn't it?) and that's really started to get me down. I started metformin a couple of months back as a trial to see whether it would help and I've never had better control. I'm having days where I'm not having a hypo, which is incredible. My insulin resistance has dropped enough that I'm able to exercise without it plummeting to the depths of hell, and I've lost 3kg. So, what have I learned? Mostly that, once again, the things people tell me aren't always bollocks and I should listen. Hypos are bad, hypos are dangerous, I am stupid. Lesson learnt.
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Diabetes is so lonely when you only have the Internet to relate to you.
#Day2 I got diagnosed with type 1.5 diabetes on March 24 2015. Type 1.5 diabetes is LADA or latent autoimmune diabetes in adults. The picture of me above was weeks before my diagnosis. I was so sick. I lost 40lbs in matter of weeks. I had all of the signs weight loss, unquenchable thirst, blurry eyesight, etc. I was so stubborn about going to the doctors to get checked out. I refused to get looked at until my mother forced me to. I remember sitting in the office with my mom when I got my diagnosis. She balled. I on the other hand I did not. I dont remember my reaction exactly but i know al I thought was cool I get to stab myself for the rest of my life. I try to find humor in all of this chaos. Tell me what’s your story?
#day1 Hello everyone I’m Marisa! I’ve been a type 1 diabetic for almost 4 years now. I’m not sure what else I need to put on here for this type1challenge for #diabetesawarnessmonth. I enjoy long walks to the fridge and procrastinating my homework until the VERY last day. I do photography as a side hobby. I live with the LOML and our cat Dopy. I’m the oldest of 4 girls and I only have one other type 1 in my family and it’s my little cousin Olivia. I’m hoping that someday they find a cure for this awful disease. I currently use a dexcom and MDI for my diabetes management. If you want to know anything else don’t hesitate to message me.