Mar 18
The fact that physical therapy is not a frontline treatment for chronic pain is a searing indictment of the global medical profession.
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The fact that physical therapy is not a frontline treatment for chronic pain is a searing indictment of the global medical profession.
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Having fluctuating symptoms is valid
Not understanding your symptoms is valid
Feeling like your symptoms have gotten worse is valid
Having your symptoms get worse is valid
Feeling like your faking your symptoms is valid and happens to so many people all the time
Symptoms are not a fixed feeling. They can get worse and they can get better both experiences are valid.
Itâs been said and told enough to be meme-ified, that âthe normal amount of pain to be in is noneâ and that âthe average personâs baseline is zero painâ. And I know this, and have tried to internalize it. But thereâs still some part of me that, when I see or hear that take, goes âthat canât be right. NO pain? Not even a tiny bit?â Because I have a hard time believing people just go around perfectly comfortable and physically content most of the time. That just sounds fake to me.
But then I realized, just now, that not being in pain isnât the same thing as being perfectly comfortable. Like, there exists this whole spectrum of discomforts that a person can experience that donât overlap with pain. (I, historically, have trouble differentiating the two, because I live primarily in the places where pain and discomfort do overlap.)
So likeâŚ.I think the average person wakes up and goes about their day where the most immediate physical concern for them is some kind of minor discomfort. Theyâre a little hungry, or their chair isnât very comfortable, or the room is a little colder than they would like. (Though those discomforts, which I also experience, donât come with the bevy of other sensations and symptoms that tip over from âmild discomfortâ into âmoderate to severe discomfortâ and also cause pain.)
But anyway, thatâs a lot more understandable to me. That sounds more right, in a way that âno painâ didnât. To remind myself that yes, they are experiencing occasional discomfort, itâs just that their discomfort doesnât tend to blur the line between discomfort and pain the way mine does.
Shout out to @thebibliosphere for existing, and for being open and honest about health stuff in addition to writing some amazing sexy vampires, all while suffering some of the most terrible health stuff. I know Iâm not the first or the last person to say this but: uuuh youâre literally the only reason I was able to get an MCAS diagnosis after having this *mystery illness* for my entire life and the past few years having it kick up to 11 and almost dying so many times now all while forgetting how to feel like a person so much that my second dose of cromolyn felt like I woke up from the Long Sleep.
So, yeah. Thank you.
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Hey, I know chronic pain is absolute hell for physically disabled and chronically ill people, but can we also talk about the chronic discomfort symptoms?
Like, it doesnât hurt per se, but it sucks ass.
Like involuntary movements, making it hard to move or function
Nausea, the absolute BITCH
confusion, brain fog, forgetfulness
Getting lightheaded or dizzy or problems with the vestibular senses
RESTLESSNESS
Numbness and tingling
Fucking fatigue. Like the kind that makes you feel like a rubber noodle that weighs 800 tons and you can hardly left an arm.
Weakness in general, like thatâs annoying as hell. Why can I not open this bottle.
I havenât experienced this, but I imagine full or partial paralysis is pretty sucky.
Trembling. Like, sometimes not even because something hurts. Your just shaking, vibrating, man. What.
So yeah. Complain about discomfort from your disabilities and illnesses, you deserve it.
