Anyway, people with brain damage I love you. People who have had strokes I love you, especially if you're told you were "too young" to have one. People who acquired your brain damage by less common means such as infection, lack of oxygen at birth or degenerative disease, I love you. People with moderate and severe brain damage, I love you. People who lost their sight or hearing or ability to speak because of their brain damage, I love you. People who have paralysis from their brain damage, I love you. People with amnesia and severe cognitive issues from their brain damage, I love you. People with rare and unusual symptoms from their brain damage, I love you.
You are not a punchline, you haven't lost your humanity, your thoughts and opinions are as valuable as anyone else's. We deserve respect.
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I've seen a few more specific this-is blogs under the @this-is-ableism umbrella so I decided to make one for brain injuries & brain damage as it's something very close to my heart and people often excuse this type of ableism, even in supposed disability-friendly spaces
Flag used in pfp and banner is this one by @emberhoards
How to use this blog:
[PT: How to use this blog:]
Click on my username
Click on the envelope symbol, or click my username a second time and click 'Inbox'
If you'd like your account to be anonymous, select 'Ask Anonymously' (note that you won't be notified if I respond to an anonymous ask, so follow the blog and check back later!)
Send in an experience that you or someone you know has had with mistreatment because of a brain injury and/or brain damage
OR
You could send in a question, some positivity, or different kind of message which I'll tag differently
Mod Info:
[PT: Mod info:]
My name is Atticus (any pronouns) and I'm a stroke survivor in my late 20s - I was diagnosed with traumatic brain injury in my youth and then experienced further damage to my brain due to my stroke, doubling up over here haha
I've faced a lot of problems with my symptoms of other conditions being doubted, being denied access to care, not being listened to, and being assumed to be incapable because of brain damage and I'm passionate about making this type of thing more known
Other ableism-based blogs I recommend include:
- @this-is-accessibility
- @this-is-anti-id / @this-is-anti-idd (intellectual disabilities / intellectual developmental disorders)
- @this-is-saneism (mental health and disorders)
- @this-is-infantilization
- @this-is-cluster-b-saneism
- @this-is-anti-bpd
- @this-is-depressiomisia (depression)
- @this-is-agorableism (the behaviours of disabled people in public)
- @this-is-audism (deaf/Deaf/hoh/hearing loss/auditory processing disorder)
and I'll add in @thisis-suicidism and @thisisparamisia because their stuff is also very meaningful to me in particular
My Franken!Kyle speech headcanons (as a caretaker of stroke survivors and vulnerable/disabled adults)
Disclaimer: I am not a professional speech therapist but I have 2 years working with dementia patients, stroke survivors, and vulnerable adults with disabilities. During my time as a caretaker, I have helped people with their physical, occupational, and speech therapy skills and have seen serious improvement with themâ itâs a beautiful thing Iâve been able to witness in my line of work and it gives me an in-depth look at how I believe Kyle most likely functions given his sexual, physical, and psychological trauma. A lot of these headcanons are based on actual traits and experiences Iâve seen during my work and I write all of them for Kyle with the utmost respect and dignity for the people Iâve worked with and other real life survivors.
âYeahâ and âyupâ are easy-to-say words and comes out instinctively in response to things. Kyle say them a lot when heâs trying to soothe Reader, animals, or others. Heâll say âyeahâ with a sassy air when he gets an attitude, and favors âyeahâ in a bad mood, âyupâ in a good mood. If heâs saying âyupâ or it usually means heâs comfortable speaking right then. Does not always work for the sentence, they are just easy, go-to words for him.
Ex. âHey, Kyle, how are you?â âYup, yup!â or âKyle, what did you want for dinner?â âMm⊠yeahâŠâ
He stutters a lot. Relearning to speak is a huge task and not every word comes easy. Soft sounds and especially âMâ sounds come easiest and will often come out accidentally instead of the intended sound/word.
Ex. *trying to say âhungryâ* âKyle mmânâŠno. M-Mug. Mug.. g-gree.â
He says words wrong and Reader interprets best she can. Iâve written this into my fics before but Kyle almost always knows exactly what he wants to sayâ itâs just a matter of getting it out. He mixes up words but Reader can usually make sense of what he means. Ex. Saying ânotâ instead of ânoâ in response, but the negative connotation and tone make up for the incorrect word.
Ex. âKyle, did you want this?â âNot. NOT!â
Repeats words when excited, frustrated, or confused. Repeating a word doesnât always help, sometimes it happens out of frustration and Kyle cannot get his point across, and while not knowing another way to do so in the moment, will simply repeat the word he knows he can say over and over, or louder and louder, hoping to be understood. When heâs in a good mood, and hears a new word or word he likes, heâll repeat it until it comes easy. Especially if it comes easy already.
Ex. *playing legosâ happy* âBlock. Block! Block, block, yup, yupâŠâ or *struggling with zipperâ frustrated* âMm! Zip, zip! ZIP! Zip zip.â
Breaking up words into smaller pieces. It makes his speech sound choppy, but can actually make more sense if he does this, and itâs usually for his own comfort. Kyle often breaks longer (or even short) words into pieces to try and say each half correctly.
Ex. *trying to say âbasketâ* âSket. BaâŠketâ BassâŠket.â
This one is sad but he says âmomâ on accident a lot. Again, âmâ sounds come very easy to him and he will say âmomâ as a sort of vocal stim when heâs tired/sleepy, upset/crying, or frustrated/struggling to speak. This is because it comes very easy to him, it doesnât take effort to say the word, and usually accompanies vulnerability (whether heâs in a good mood or not) due to his past.
Ex. *tired/upset* âKyle which one do you want?â âMmâŠmom. N-no⊠mmmâŠmommâŠ.?â
He plays with words. Like repeating them to adjust to the sounds, Kyle will hum, mumble, and talk to himself, figuring out his speech and new words to try and get comfortable speaking again. If heâs in a good mood, heâll repeat words that he likes (if heâs eating, âyumâ is a very easy word that he can say over and over in between bites), or if you say a new word and he tries it out and it actually comes easy, heâll just keep saying it because he can and it doesnât take too much effort to say. đ€·ââïž heâs silly like that
Ex. *after learning the word tree* âMm.. tâŠtree! Tree, tree⊠tee. Tee, tee, ree⊠Ree, ree!â
Heâll shout words heâs confident with (or think he is confident with). For example, if he knows a word and is prompted by either that word or something that he can respond to with that word, heâll blurt it (usually loudly). But heâs not always accurate with his pronunciation, or even the word he means to say, so he may accidentally shout random nonsense and ends up embarrassing himself, but the reader is always supportive of him trying.
Ex. âDo you want a bath, Kyle?â âMAT! MmâŠno. Math?â âBath.â âBATH!â
If he gets too frustrated with a word, heâll give up. This usually happens after several failed attempts to say a word and he will usually exhale sharply and hide his face, embarrassment and frustration being the most prominent emotions when he struggles to speak.
Heâs grown less embarrassed of his flubs and is more easy to laugh at them when you point them out. This is good but he still does get embarrassed when he fails to say thingsâ Reader is usually careful to be encouraging rather than punishing when Kyle messes up in his speech and communication.
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Having a rare disorder or rare complications can be so incredibly lonely. Thinking of people who will never meet another person in person with their disorder or have difficulty even connecting with other people online with their disorder. Thinking of people with disorders or injuries that are common, but their age makes them a huge outlier. I feel alone, but I have to believe i'm not