We are Absolutely too Grabulous to be stopped by a snowstorm! You can still catch Grab Bag 7: Absolutely Grabulous! this Friday the 15th at the Rendezvous! Snacks! Burlesque! Circus! Closed captions! See you there! https://grabbag7.bpt.me #burlesque #nerdlesque #seabq #seattle #seattlesnow #stillkickin #cantstopwontstop #circus #tightwire https://www.instagram.com/p/Bt15-a3FODC/?utm_source=ig_tumblr_share&igshid=1d4sn0lxktd5z

Just got me a new FeMNist tee made just for me at the Still Kickin’ pop-up store at MOA. Love it.

Monday’s accessories include an addiction to coffee and an XL Patagonia Synchilla to keep the demons away - #bonescoffee #patagoniafleece #synchilla #mondaymood #stillkickin #pnwvibes (at Seattle, Washington) https://www.instagram.com/p/CcOcB6NOws0/?igshid=NGJjMDIxMWI=

In exactly 22 days I turn 26. For most people, this isn’t a big birthday. But for me, every birthday is big. Every day, every week, every month, every year I manage to claw from my condition is a victory worth celebrating 🥳 Obviously I wasn’t expecting to celebrate this momentous occasion during a global pandemic whilst in isolation, but I’m sure we’ll find a way to enjoy the day. I honestly never, ever thought I’d live this long. I’ve lost count of how many times I’ve nearly died. But I’ve survived. I’m still here! I loved bitches! When I started at Ty Hafan we were told part of the criteria was that I wasn’t expected to live to see 19. At the time we didn’t think I’d see 14 tbh. And Hope House criteria is for those not expected to live to 25. Most palliative YA criteria and services only go up to 25, because survival past that age has always been so rare. Seeing myself bypass that milestone, along with so many fellow palliative care warriors, make me very, very happy. When I was asked to imagine a future, even at 18 and 20, 25 seemed hazy and distant, an impossibility. Anything after 25 was just... blank. I had vague hopes and dreams, but I was never able to make them solid. I think I was too scared to imagine something it was so unlikely I’d get to experience. And now I’m turning 26, and I’m living a truly incredible life. I’m enjoying my life, despite all the shite I go through. I’m lucky, lucky, lucky, to have a life so full of love, laughter, joy, and truly wonderful people. The next goal is turning 30. It’s the longest goal I’ve set myself; normally I stick to a year or two at most. But I’m daring to dream. After all, I’ve made it this far! Anyway, I guess I want to thank you all for filling these last 25 years and 343 days with good things 💛 #palliativecarewarrior #stillkickin (at Felindre Reservoir) https://www.instagram.com/p/CGbGR3djRWN/?igshid=1kri1uho9x2d8

3 years ago today got rushed into Resus with a suspected blood clot on the lung and had a GENIUS doctor (sense the sarcasm yet?) who sent me home with pretty much zero tests because “you’re Paliative care anyway” and because the machine they wanted to scan me with was broken 🙃 only for me to get rushed back in a few days later. Today was definitely a far better day, and one I’m immensely grateful to be here to see 💜 I’m always surprised when I have an anniversary of a big NDE; tbh there’s been so many they all get a bit blurry 🤷🏻‍♀️😂! But I’d like to say a big hello to that dr, wherever he is, and tell him my palliative care ass is still kickin 💪🏻🖕🏻 and enjoying a pretty fantastic life. #stillkickin https://www.instagram.com/p/CFDWshdD3nY/?igshid=z2zabsfulphg

Cheers to five weeks and six days of no benzodiazepines and one week and one day of no opioids 🙌🏻🥳🥂🎉 I’m still Paliative care, still have severe seizures and spasms, still have severe chronic pain, but I’m also still here, still living my best like, still finding something beautiful in every day! Detox and withdrawal symptoms suck, but I’m surviving them. I’m immensely grateful to all the amazing, wonderful, very patient people making this possible every day ❤️ #opioidwithdrawal #benzodiazepinewithdrawal #proudofmyself #gratefulforallthesupportandlove #stillkickin https://www.instagram.com/p/CB_ulqTjheB/?igshid=1rzc11dzaqttp

DA LAST FOUR... HARAP KORANG BERTAHAN PA DULU SEBULAN NI SEBELUM DAPAT AQUARIUM BARU... #lanoi #yeay #aquascape #guppyfish #stillkickin #nobonsai (at Kubu Kuat Lanoi) https://www.instagram.com/p/CBAsWa6JsTw/?igshid=ofld3oenk56i

Hot diggety.... I did it. Welcome to the new space mama... you have a terabyte drive and you did it yourself. #bitemecovid19 #macbookpro2012 #stillkickin (at Riverside, California) https://www.instagram.com/p/CAoO2G1HTuC/?igshid=10fjpcej5dgwo