Apply for SSI (this involve tell work history) (must have 2,000$ or less in bank account when apply AND FOR ENTIRE TIME AFTER THAT - NO MATTER HOW LONG THAT TAKE) (2k+ per month average Monthly rent in self area for a 1 bedroom apt last time check lmao)

Wait for multiple year because why would government ever do anything quickly when someone not allow to have more then a month rent and not have income

Deny despite be unable to Walk (full time wheelchair user) or Speak or spend any significant time at a computer on a regular basis. Disable enough to need a caregiver every single day to even be able eat or bathe or wash hair and need help with bathroom and dress and etc etc etc (but deny because clearly self can still work clearly self not disable)

Eventually get approve

Approve mean food stamp and Medicaid (which end up be connect with each other and with SSI - only need update one place about any of the thing like address change or income change or etc

6 month later get ominous letter about the short period of word record that self have (that the SSA have all the info of way back from the INITIAL APPLICATION because that A REQUIRE PART OF APPLICATION)

Get force onto ssdi because "work too much" (baaaarely have the amount of work credit for self age to qualify for that)

... The SSA know this from the begin. From the very first application that at this point like. 3 year prior. Self should have never be put on SSI in the first place lmao. (Self would be less upset at this whole thing in that case because right now it feel like have relative stability and then have it all rip out from under self compare to if go into it from the begin with the SSDI stuff it would have always be that way not would know any better)

Functionally, this mean make 100$ more then on SSI

Theoretically. Suppose to have less restriction then when on SSI (for example. Suppose to be able have more them 2k in bank account). SSDI suppose be "the good one" (because of ableism lmfao). However. Disability lawyer say in self situation where it on the threshold of SSDI it common to get ping pong between SSI and SSDI so still need follow all the SSI rule or could get kick off for not qualify anymore for SSI anymore if do get ping pong back to SSI

So still have to follow SSI rule but make 100$ more? Right? That not so bad? WRONG

Lose food stamp completely because no longer on SSI so it no longer connect

Get punt to a different Medicaid (only thing self get tell that self no longer qualify. Nobody say anything about SWITCH only that self would NOT BE ON MEDICAID ANYMORE

No explanation for either of these.

Reapply for food stamp and receive it at like??? Think 30$ less. Okay so now it like get 70$ more then when on SSI right?

Rent. Voucher. Attach to income. Income go up 100$ mean rent go up about 30% of that. So another 30$

So now self at SSI+40$ but Medicaid and food stamp no longer connect and self have no way to communicate wit either because . Nonverbal . Case manager not can call for self because the people not take call from non-client . But there no email option. The suppose be a way to add case manager as authorize representative or whatever it call. Ask for this paperwork to get mail like 6 different time and it never happen (get other mail so know have right address) so better hope never need contact anyone about anything lmao because Unable To

AND. THERE MANY DIFFERENT BENEFIT THAT WILL TAKE SSI BENEFIT VERIFICATION LETTER AS PROOF. these benefit not take SSDI benefit verification letter (probably because SSDI CAN be a couple thousand a month? But the letter would say how much??????????) which mean there a lot of benefit that just. WILDLY more difficult to apply for , ssi just show the piece of paper that can print out from the portal or get it mail to mail address or go into SSA office and get. But if not have SSI (but have a very similar income and also disable and etc qualify for SSI in every way except for like. Less then 9month of work) then it very long and complicate process that self not understand lol

THEN get tell that would be automatically switch over to Medicare. Get a pamphlet cover in picture of old people that have all this information (confuse as hell) but all of it relate to 65? 67? Whatever birthday when old people quit qualify. Self more then 30 year younger then that lmao. None of this information have anything about what this would look like for self.

It only say "24 month after" but it not clear about what the 24 month after. After determine disable onset? Nope that date already pass. 24 month after start receive SSI? 24 month after send this letter? WHO KNOW.

AND SELF NOT EVEN CAN CALL. SELF NONVERBAL. the SSA do have a authorize representative program but only we there a active application and self get approve for SSI like a year and a half ago so . Past the open application point. So just . Unable to call . Unable to list anyone to be able talk for self because CLEARLY (sarcasm) that only for when someone still in apply phase. Not useful any other time (no not even during recertification, why would need help for the process that entirely happen over phone? Why would need help make appointment when only able make appointment over phone? Clearly the phone superior in all way. (No self cannot use TTY even if self own a tty device, which not, self need case manager to do phone call and need use symbol AAC device to talk to case manager and case manager talk to the SSA and also rephrase all the question because self not understand lot of time esp since soooo stress and the SSA people generally incredible mean like super super mean and ableist which make more stress which make harder)

Turn out none of the above it end up be A Random Month that not 24 month after any major thing self could tell lmao

Medicare cost : 202$ per month, almost 300$ deductible , AND would only pay for 80% of the thing that Medicare deem to cover (Medicaid have be cost 0$ per month with 0$ deductible and of the thing that Medicaid deem to cover it pay 100%) . This over 2500 per year. And when self AAC device eventually need replace? That multiple thousand dollar even just the 20% self would need to cover. When self POWER CHAIR break down? That. Probably close to 10k???? That self would need to cover? Plus self not have mobility to use toilet all the time so need use diaper every month and who know how much that cost

So now self at SSI-160$ per month but also a extra almost 300 per year plus 20% of any medical stuff need cover after that 300

Self try email the case manager for the disability service branch of the state. Ask about if there any program to help with this because self Cannot Afford This. Case manager try contact someone. That person have no idea but say to contact someone else. That person have no idea but say to figure out who the (specific job title) assign to self case. Try locate that person name. This end up be a wild goose chase that turn up multiple people name NONE of who respond to self email or case manager email or call or therapist email or call.

There do be a option to opt out of be force onto this. That deadline 4 month from when get the letter that say when the force change would happen.

Spend every month of those 4 month work with state case manager and therapist to try to contact ANYONE who could explain ANYTHING . Not a single answer. From any direction.

So self opt out. Sign the back of the card and send it back to government because simply not can afford even the 200$ monthly premium let alone everything else. Not could risk it.

A few week after the opt out deadline? Information letter start arrive by mail. ALL OF WHICH DATE AFTER the opt out deadline

These information letter make no sense. All the information split up and there big gap and nothing cohesive. Self get 12 letter within like . A week? Or two? Of each other.

At this point it unclear if the opt out work or not

And also? Maybe relevant to mention. The premium and all those cost? Only cover like doctor bill and treatment stuff not medication. Prescription medication a whole separate section that need sign up for AND PAY separately.

It seem like? Self get? Automatically enroll into one of those also?

Supposedly there suppose be program to help low income people pay for Medicare premium (maybe coinsurance and deductible too?). There also different source say different thing about whether self state allow dual eligibility but many source say if on Medicare then automatically not qualify for Medicaid. But ? Unclear? This why self try to talk to someone about these thing

The 202$ Medicare premium come straight out of SSDI payment without self have any choice in the matter. (Since the SSA notoriously take hella long to process paperwork. And also may have just lose the opt out form. Who the fuck know it might be many month before process it not know)

Right now, self still not have any idea what self insurance look like. Not know if the opt out go through. Not have stability re: food stamp or insurance. Could be send back? To SSI at any point. But right now make less per month then someone on SSI make. Despite also get less food stamp and everything and not have any other income beside this and in literally same live situation disability situation as when self on SSI.

There a lot of ... Idea about SSDI that get toss around. And these idea MAY VERY WELL BE TRUE if work for a long time and build up to a large monthly payment (at which point the food stamp and Medicare cost and etc not really would apply anyway)

These idea common enough that when self end up mention to state case manager that this whole process be horrible and stress and everything worse right now then when it just normal SSI with the normal restriction that self know and know how to follow. And the state case manager act like self be ridiculous and should be happy. BUT THEN NOT EVEN KNOW WHAT SSDI ACTUALLY BE. LMFAO SELF ASK TO SAY WHAT SSI BE AND WHAT SSDI (the two route for disability income in the US - get sort into one or other base on how much have work) BE AND CASE MANAGER NOT COULD ANSWER AND WHEN SELF EXPLAIN SAY THAT IMPOSSIBLE BECAUSE NO SSDI JUST TEMPORARY WHILE WAIT FOR SSI???????? WHAT??????

There also a lot of ableism around how general society see the two. Because SSDI require work credit and . The general rule like 40 work credit? Think? Which take many year of work to amass because only can get so many per year. Most people (from self experience) not even aware that there age different where if in a young age group only need like. 6.

Self get force into work in order to be allow to live at parent house after parent push medical withdrawal from college due to self disability be too severe to do college. End up push body way too far (this very much a factor of why self so much mobility problem now need full time wheelchair) to try keep this job but end up be lucky enough to use that chain store job to transfer to a different location in a different state to be able to run away. Even after move the entire time work self constantly in trouble for various symptom of disability and despite push as hard as could (and despite be lucky enough that the store struggle enough that extremely reluctant to fire anyone ever even if the person not could stand up or walk to do the work and end up lay in aisle because too much pain lmao) not could last very long after move and end up homeless for multiple year. Overall self total work experience timeframe less then 9 month.

Compare to the fact that SSI people have either never be able work (or not enough credit to qualify for SSDI). Because of this, SSDI often see as the people who "work for it"/"earn it" and SSI as the disable "lazy" people. This even build into the restriction for the two and the amount of money receive for each. If a SSDI receiver actually work a decent amount could make significantly more then SSI. And NORMALLY SSDI suppose to be able save or have income etc and still receive same amount benefit.

And that, probably true for the portion of SSDI people who make enough that not eligible for Medicaid or food stamp.

However. Lmao.

Even the "good" program . Suck ass lmao. Everyone always talk about how SSDI better.

When self in high school self school try to get self to apply for SSI because (correctly) think self would never be functionally able to work ((((which. Yes technically have a job record. The first job Self only manage to work likeee. 7? Work day? (Within the first 2 week) And already in trouble for be too slow and not good enough and not fast enough and cry and not understand enough and fuck up and then have to quit because could not even crawl to the bathroom let alone get to work, and the second job self spend many hour on the clock sit/lay on the floor between the aisle at that store because unable to get up or move. Or help customer at all. And it take self a full half hour to get from self area of store to the back... A distance that under 5min for everyone else. So like . Lmao. Truly self get SO lucky in find a store who desparate enough to pay self for long enough for self to be able run away. WILDLY lucky even if it end up hurt body long term to push that much but that more on self and society then the store itself kdgdkgskfksfjsfjsgksg anyway)