Please send me love and support. I need it. I know I have kindness from afar, but I am physically alone here through all of this and not having a hand to hold is devastating. Please honor that fact for me. I've had many belittle my aloneness through all of these battles and that hurts me. What many don't understand is how horrible it is to have no support when you're going through surgeries alone and no support as a chronically ill person in general. But I do know many of you who have been there, truly get it. And I am so, so sorry. So, to those of you who don't, please respect and hold space for me when I say I am alone and scared. 💔 Hydratinitis suppurativa is evil. These surgeries are my only chance of surviving longer than the next five years. Hospice care is a wonderful thing. Sadly, in this country you have to be dying to get decent medical care. My groin looks even more like Frankenstein. The pain physically and mentally is excruciating. I'm fighting my Complex PTSD very hard - the flashbacks, night terrors, nightmares, and sleep paralysis are ripping me apart. This is extremely frightening facing this physically alone here in Portland. Per adura ad astra. 🌟 Please read more on my Go Fund Me page and #helpmesoar. 💚 ➡️ www.gofundme.com/f/HelpHannahSoar ⬅️ (LINK IN BIO) #trigeminalneuralgia #hydratinitissuppurativa #trigeminalneuralgiaawareness #chronicpain #autoimmunedisease #sickandtiredofbeingsickandtired #spoonielife #butyoudontlooksick #skingrafting #invisibleillness #spooniewarrior #fundraising #Paintudes #influencerlife #painrelief #sepsis #spoonies #surgery #neuroscience #neurology #actuallyautistic #baldisbeautiful #ptsdawareness #gofundme #raredisease #chronicallyill #strongwoman #hospitalssuck #pleasehelp (at legacy Emanuel hospital- Burn Unit) https://www.instagram.com/p/CQ1sGn7FRMO/?utm_medium=tumblr
