#not comics

I've given these tips to enough other wheelchair users that I figured I could make a post about it, and this blog is aligned enough with it that I figured I could post it here.

I've spent time as an administrator for a pre-K and school age programs, and I am also in my final year to be dual certified as a special education/general education elementary school teacher in America. I am also an ambulatory wheelchair user, but cannot safely move without a mobility aid, even when I am standing/walking. SO. Here's a guide/rundown of how I personally talk about disability with the kids I work with!

When First Meeting a Class

You do not need to explain/justify your wheelchair, and any adult who believes you do is probably doing it for their own curiosity and not an interest in the kids.

My personal recommendation is to say you are always happy to answer questions about yourself, and leave it open ended.

If the class had to be rearranged for your wheelchair and you feel comfortable saying so, I will sometimes say "I'm really grateful that you moved the furniture so I could get around. I can't wait to meet everyone!" It makes it clear why the need is there, and if a kid accidentally blocks you you can always ask them to move so you can get through and remind them.

When They Ask Questions

"Why do you use that?"

I respond by asking them what is 'that' - being careful to speak with a curious tone. For young kids, they might not know the word, and will probably point. From there you can say "oh! this is my wheelchair! have you heard that word before? i use it to get around since walking is [very hard/impossible/not something my body does]."

"Why don't you walk?"

I respond by telling them walking is something I can do for a little while, but it really hurts. Link it to a concrete example. "Have you ever gone into a super hot car, and you could do it for a little, but you wouldn't want to be in there all day?" "Have you ever tried to hold snow (or an ice cube) without gloves, and you could do it for a little but then it started to hurt your hands because it was so cold?" Make it personal, specific, and simple - developmentally they may still need support understanding that other people have different experiences (or might be totally unable to yet).

"How'd you get into that?"

I typically respond silly - "Well, I sat down!" If you want to, and you do not need to, you can make this into a (short, keep it short, their brains are so interested in everything and switch very quickly) lesson on transfers/how people get in/around with their wheelchairs.

"What happened?"

I respond by asking them what they mean. This typically leads to another question which I mentioned above. Alternatively I sometimes say "I realize a wheelchair helps me get around safely!"

"How do you use the bathroom?"

My strategy that's worked best is being calm and friendly while saying "I don't like talking about how I use the bathroom." If you can redirect after that (point out something for them to do, change the subject to something they'll find more interesting) it'll make it easier. If they ask why, you can say that everyone has stuff they don't like talking about and for you it's the bathroom.

Physical Interactions With Your Chair

They touch your chair

We had a big thing about this in my pre-K rooms - what we would do is if a kid tried to touch my chair (or did) I would tell them "It's so cool that you want to explore my wheelchair, but I want to make sure you're safe, because there's a lot of moving parts that can pinch you! Can I give you words for when you want to touch my wheelchair?" If no, then let them know you can't let people who can't be safe touch your wheelchair. If yes, give them a script to ask for permission - you will have to repeat it. A lot. Gentle repetition is your friend and within two months my kiddos were asking everyone permission to touch them at school. My script went "Teacher Pecan, can I touch your wheelchair?" "No, now it's a safe time, because [I am moving a lot/I am tired/I need a break/you have a task to do]. We can check in again [when it is a break time/when I feel better/when you finish your task." "Yes, it is safe to touch my wheelchair right now. Can you point to where you want to touch?"

They kick your chair

Every time a kid kicks/hurts your chair, say "ouch! that hurt! my wheelchair is part of my body, it helps me get around!" Repetition and speaking clearly are your friends. If a kid keeps kicking your chair, finding another thing for them to kick (for example, a ball) can help divert the kicking need into something safer for everyone :)

They (try to) sit in your lap

Gently use your hands to get them off or keep them off. Calmly say "Oops! My wheelchair isn't big enough for the two of us!" If they complain/protest, validate and then explain. My script is "I know it looks like a cool place to sit, but my wheelchair is just for me."

They (try to) push your wheelchair.

My last two chairs had no push handles, but my second one did! It can make sense to panic when I kiddo pushes you - I've had them try to push me into walls (by accident). Here's what I did that worked great: Immediately lock my breaks/grab my pushrims, and calmly say "oops! We don't push wheelchairs without permission!" If they stuck around/didn't immediately run away, I would ask them if they remember a time an adult picked them up and took them somewhere they didn't want to go (typically a car). If they say yes, and even if they say no, I explained that pushing my wheelchair feels just like that, and makes me scared. Most children never pushed it again, and everyone stopped after the second try.

Miscellaneous Tips

"Isn't that cool?" is your friend. Any time a kid is first learning about your wheelchair, end the sentence with it. Any time a kid is nervous about your wheelchair and you explain something, end the explanation with it. "It helps me get around, isn't that cool?" "These are called spokes. Aren't they cool?"

Wheelchairs can be grounding tools when you have a good handle on the class and boundaries! Only if you would like to. My spokes on my last chair were rainbow, and I would use my chair to physically get between them and the emotional trigger, and ask them questions about my spokes. "What colors are next to green?" "Can you point to which one is your favorite?" "Hmmm which color do I get if I mix red with blue?"

"Why doesn't [limb(s)] work?" My left foot is (mostly) paralyzed due to nerve damage, and my script is "My brain can't talk to my foot and tell it to move." You can say whatever you'd like, just try and keep it to basic body parts unless the kiddo is super into anatomy.

If they imply/say wheelchairs are bad, or you might be sad for being in one, you can correct them by telling them how cool your wheelchair is! Get them to compliment it too, if their attention span allows. "I don't feel sad about my wheelchair, I love it! I love the color! Do you? What color do you think I should get next?"