The North American Mitochondrial Disease Consortium is a group of scientists, doctors, nurses, and researchers who have made it their mission to research and eradicated not only complex 1 deficiency, but also every other mitochondrial disease as well. They will do this in 6 steps, firstly there goal is to educate practitioners and the general public about this disease, and raise awareness, then they will make centers of excellence, to provide correct diagnosis and teach practitioners proper technique and practices in terms of diagnosis and treatment for this disease. It will then provide patient support group for families who are suffering with this disease, this support group will be known as United Mitochondrial Disease Foundation (UMDF). It will then foster clinical research to find the natural history of this disease, more basic researches will then be made to dig deeper into these diseases to find other variations of these diseases as well. The final step will be to start very meticulous and innovative clinical trials to find a possible cure or better treatments. Organizations like these are very important as they are giving this disease more awareness and are taking a stand to eradicate mitochondrial diseases altogether.
