Top Posts Tagged with #mobility aid user

i talk about medical fatphobia a lot and kinda feel like ranting again. it negatively affects every aspect of the care i seek and receive, yet no one except other fat people speak about it.

it is insidious, it affects everything, fat people die from it. but no one speaks up.

i am mostly housebound, and the time i spend at home, i spend 95% in bed. i live with severe chronic pain and moderate-severe MECFS to name the worst of my conditions. i struggle with walking both due to excruciating pain and due to PEM & crashing from MECFS. i am mostly housebound, and the time i spend at home, i spend 95% in bed.

i use a rollator, but it isn't enough, i need a powerchair. but when i scheduled an appointment with OT i got told that they can clearly see my need for a powerchair, but that they won't prescribe one because "i need all the exercise i can get".

it is torture, it is cruel.

all my health issues have been blamed on my weight, to the point where they will not even examine me. they see that i'm fat and won't bother to even do a physical exam. i get denied treatment, i get denied medications, i get denied lifesaving mobility aids, i get denied healthcare.

i am scared. my pain will remain severe and my MECFS baseline continues to worsen, because of medical fatphobia. and no one talks about it. no one.

LEARN ABOUT MEDICAL FATPHOBIA.

SPEAK UP.

THIS IS ABLUT MEDICAL FATPHOBIA AND FAT DISABLED PEOPLE — DO NOT DERAIL.

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No, your event is not a 'safe space' for queer kids if disabled queer kids cannot access or attend it safely.

#disability #seizures #neuropunk #cripplepunk #mobility aid user #cpunk #actually disabled #nead #functional seizures #epilepsy

I think one of the most annoying aspects of having a bulky mobility aid is that you completely lose the right to wander. Almost everywhere you go is "in the way" to someone so if you go somewhere and then change your mind and go back it's treated as if you're being rude and disruptive when it wouldn't be seen as an issue if someone who doesn't have a bulky mobility aid did it. It's just normal human behaviour to change your mind sometimes. This is doubly an issue when you needed assistance getting there, there's an intense pressure to stick with every single decision you make that doesn't apply to everyone else, and it makes every trip out in public so stressful.

#actually disabled #disability #physically disabled #physical disability #cripple punk #cripplepunk #mobility aid user #mobility scooter #50 #100 #500 #1k

Privileges of being visibly disabled (sarcastic) edition:

People ask you about your medical history at random and sometimes without even a cursory greeting

People target you because they know you (presumably) can’t fight back

People treat you as both more or less capable than you actually are (whichever is more ableist)

Infrastructure is not accessible in many ways and even hostile at times (impacting those with blindness, deafness, mobility aid users, and more)

Your rides from apps get canceled due to your disability equipment

People get grossed out by what keeps you alive (ostomies, tubes, ports, etc)

People grabbing and moving you without consent

Being treated like furniture the more you are perceived to be disabled

Feel free to add your thoughts or other brilliant suggestions for this list.

#fm talks #disability #cripplepunk #actually disabled #cpunk #cripple punk #wheelchair user #ostomy #ileostomy #mobility aid user

Hey you, yeah, you, give that character a mobility aid. Do it. That girl who canonically has a leg injury? Give her a cane. That guy that doesn't have a canonical injury but whom you feel ok your heart is definitely chronically ill? Give him a wheelchair. That character you headcanon as disabled because they just kinda feel like it in your head? Give them crutches! That character you really really like and really really relate too? Give em a rollator! Sky's the limit! Go wild! People are gonna have problems with us creating a space for ourselves regardless, might as well bring a few of our favorite characters and OCs with us!

#mobility aid user #cane user #actually disabled #actually chronically ill #chronic health issues #chronically ill #chronic illness #yes even that character that appears healthy. people tell us we don't look sick too

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Saw a post earlier about disability and exercise and how some disabled people can’t exercise and that actually brings up an entirely separate discussion of how most people deliberately define exercise to exclude activities that are mostly disabled people do like PT. Exercise is defined as "an activity requiring physical effort that's used to sustain health or fitness".

PT is exercise.

When I do stretches and the such that is exercise.

It’s not mid or high intensity stuff, it’s not running or hiking or football or the gym or whatever but it counts.

( this is not a dig at that other post btw, that just reminded me of this, both opinions are valid and can exist together and I do agree with them )

#disability #disabled #mobility aid user #ableism

i really think ablebodies don't know how much mental effort it takes to do something like stand/walk — like yes, of course there's physical effort, they usually acknowledge that. but there's a mental strain to it as well, you have to be conscious of where you're putting your weight and your balance and if you start feeling lightheaded or not and on and on and on it goes. there's mental strain to physical disability and it goes very un-talked about.

#rant #disability #cfs/me #chronic fatigue syndrome #heds #hypermobile ehlers danlos #hypermobility #ehlers danlos syndrome #actually disabled #actually autistic #autism #disability pride #mobility aid user #chronic pain

You know you're disabled when you see someone getting ready in the morning and think, "damn you've been standing for a while do you need to take a break?"

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