Today is M.E./C.F.S. awareness day. A while ago, @prillytee from the @chronicmarketplace asked the M.E./C.F.S. community what would we do if we were well tomorrow, and proposed we create a piece of art with out answer. Many artists have poured their hopes and wishes to create their answers in different mediums, which you can see in the video I shared in my stories and The Chronic Market has shared in their feed. This is mine. Let me preface this by saying that I am one of the lucky ones. I can function, I can work, I can get out of home if I need to, I can lead what to outsiders may look like a normal, ordinary life. And yet... Of all the things this illness has taken from me, the one I really wish I had back is the ability to be the mom my kids deserve to have. The mom that goes to all the functions. The mom that walks them to school. The mom that plays with them on the floor. The mom that can listen to a full recount of their day, even if it lasts forever. The mom that is there. What I miss is not who I was, but who I could have been for them were it not for ME-CFS. Mom guilt is overwhemingly real, and when dealing with a chronic illness even more so. It's the side effect I wish most away. If tomorrow I was well, I would be the mom my kids deserve to have. And you, my fellow M.E./C.F.S. warriors? What would you do if tomorrow you were given back all the energy that chronic illness has taken away? #mecfsmom #mecfs #mecfsartist #mecfsawareness #mecfsawarenessday #chronicillness #chronicillnessandme #motherhood #spoonie #spooniemom #spoonieartist #ifiwaswell #momoftwo #embroidery #embroideryisart #embroideryhoop #hoop #bordado #fatigacrónica #diamundialdelafatigacrónica #encefalomielitismialgica #myalgicencephalomyelitis https://www.instagram.com/p/COx-utyLzb6/?igshid=1eeiigmejet5x
