#jumbulancetrust

🎶 Soft Jade, warm Jade, little ball of cwtch, happy Jade, sleepy Jade, purr purr purr! 🎶 #onholiday #travellinghometoday #jumbulance #jumbulance2019 #jumbulancetrust #bigbangtheory #softkittywarmkittylittleballoffurhappykittysleepykittypurrpurrpurr #shesouters (at Bayern, Germany) https://www.instagram.com/p/Bz3Z5bkhdxc/?igshid=19eph3i2me9c

So I’m working on one of the most important and enduring Jumbulance traditions... every single year without fail, me and @mjenga10 write an individualised postcard to every single person in our group! Yes, it takes time and effort, like anything important, but it’s worth it. It’s so lovely to hear our friends and adopted family tell us they treasure our postcards, and keep them in places they see them every day 😭❤️ Already feeling emotional about saying goodbye to these amazing people 😭💔 it’s been an incredible week! #onholiday #austria🇦🇹 #jumbulance #jumbulance2019 #jumbulancetrust #postcards #ajumbulancetradition #everyonegetsapostcard (at Hotel Sonnschein) https://www.instagram.com/p/Bz1KWkABuVu/?igshid=phjr57hi6ogm

It’s fancy dress night! I think I’ll try defying gravity 🧹🧙🏻‍♀️💚! Know who I am? #onholiday #austria🇦🇹 #jumbulance #jumbulance2019 #jumbulancetrust #fancydressnight #ithinkilltrydefyinggravity #doyouknowwhoiam (at Hotel Sonnschein) https://www.instagram.com/p/Bz0yRubhtW5/?igshid=1kd8toze833m1

No filter needed... went up the mountains 🏔 on the gondola 🚠 and loved every second! The view was absolutely incredible 😍 feeling incredibly lucky to see such beauty 💖 #onholiday #austria🇦🇹 #jumbulance #jumbulance2019 #jumbulancetrust #lucky #whataview😍 #thehillsarealivewiththesoundofmusic #blessed #onthegondala (at Niederau, Tirol, Austria) https://www.instagram.com/p/Bz0sywghWY8/?igshid=1i332f3ato3ts

No filter needed... went up the mountains 🏔 on the gondola 🚠 and loved every second! The view was absolutely incredible 😍 feeling incredibly lucky to see such beauty 💖 #onholiday #austria🇦🇹 #jumbulance #jumbulance2019 #jumbulancetrust #lucky #whataview😍 #thehillsarealivewiththesoundofmusic #blessed #onthegondala (at Markbachjoch, Austria) https://www.instagram.com/p/Bz0j-OWh4k3/?igshid=16s896ltm778l

Expect lots of photos tomorrow from today, but tonight’s update is this; I’m PISSRD! #impissed #jumbulance #jumbulance2019 #jumbulancetrust #austria🇦🇹 #onholiday (at Hotel Sonnschein) https://www.instagram.com/p/Bzys7NDhpTG/?igshid=nvc867juzv8x

So we got very rudely awoken at 5.20amby me having a spasm! Jade got me sorted and gave me my meds, then tried to go back to sleep 😴 for half an hour, bless her! Now she’s having a shower whilst I take me most important drug; caffeine ☕️😂!! #goodmorning☀️ #onholiday #austria🇦🇹 #jumbulance #jumbulancetrust #jumbulance2019 #spasmssuck #spasmscankissmyass #caffeineaddict #firstidrinkthecoffeethenidothethings (at Hotel Sonnschein) https://www.instagram.com/p/Bzw0kWwBbLD/?igshid=zgjtuvatr2wo

When I post about my holiday with Jumbulance, you guys generally only hear about the good stuff. But just because I’m on holiday, I don’t stop being a very poorly palliative care patient. I still have all the medical crap to deal with... and that includes my seizures/spasms. Tonight I had a pretty big and very painful seizure-spasm combo at the dinner table (luckily I’d had my dinner; I was starving, and yesterday I had to skip tea because of a seizure, so I’d have been hella mad if it happened again!). My spasms/seizures are horrible... but what makes them far easier to bear during these holiday with Jumbulance is these amazing people who support me through these seizures and are there to offer much needed comfort, love and cwtches after 💖 pictured here are just a few of the wonderful angels who supported me tonight. Helen told me tonight I’m incredibly brave for dealing with what I go through, but I told her that I think it’s people like her, like these guys, and especially like Jade, who actually choose to witness my pain and suffering and support me through it, whilst knowing these episodes can be life threatening... to me, doing that, supporting someone through that, loving someone through that, is true bravery. I don’t have a choice about dealing with my spasms/seizures; they do, and they still choose to do it. Love these guardian angels of mine so much 💖 extra special shout out to @carenzajordan and @jdavies1988 for the best cwtches 💖! Love this selfie 🤳 of me and my mate Alex 😁! #onholiday #austria🇦🇹 #jumbulance #jumbulance2019 #jumbulancetrust #spasmssuck #seizuressuck #palliativecarewarrior #bravery #loveisthebestmedicine💖 #cwtchesarethebestmedicine❤️ #lovemyjumbulancefamily #igetthroughitbecauseofthem (at Hotel Sonnschein) https://www.instagram.com/p/BzwEgtPhcQY/?igshid=17spiid4o95ed