#imawarethatimrare

Thank You #🙌🏾🙌🏽🙌🏼🙎🏾🙎🏽🙎🏻#JehovahJireh 💜 #ThankYou#GRACIAS #Remercier #Asante #谢谢 #Thankful #favored You just be showing Out #HAPPY#THURSDAY °°°°°°°°°°°°°°°°°° I trust in you with all my heart and lean not onto my own understandings..You always Provide 😝 °°°°°°°°°°°°°°°°° What's the Purpose? #Prosperity Change your reason❗ #Prosperous Change your results. #Exceedingly Anything Is Possible. The Power of 🌠 a #teatufulgirl #IknowtheTruth #universalshit #prettyBlessed #teatuful⚖️#instagood #weekendvibes #thankyou#love#faith #vibes #feelingBlessed #Thelordismyshepard #WHENyouKnowBetter 👀#imawarethatimRare #reasonreapresult📷#teatufulquotes (at Atlanta, Georgia)

I could teach you but I’d have to charge... #imawarethatimrare #mymilkshakebringsalltheboystotheyard #betyoucantdoitlikeme #ifiwereyouidwannabemetoo #theyseemerolling #theyhatin #hatersgonnahate #takingnotes #fans #hipmommastuff #hipmommagram #lifestyle #blogger #hihaters #watchme #ysl #instamood #instadaily #giveemsomethingtotalkabout https://www.instagram.com/p/B2Sq9HUFn-T/?igshid=1v432maw4wt26

I could teach you but I’d have to charge... #imawarethatimrare #mymilkshakebringsalltheboystotheyard #betyoucantdoitlikeme #ifiwereyouidwannabemetoo #theyseemerolling #theyhatin #hatersgonnahate #takingnotes #fans #hipmommastuff #hipmommagram #lifestyle #blogger #hihaters #watchme #ysl #instamood #instadaily #giveemsomethingtotalkabout https://www.instagram.com/p/B2Sq9HUFn-T/?igshid=1v432maw4wt26

#JehovahJireh 💜 #ThankYou#GRACIAS #Remercier #Asante #谢谢 #Thankful #favored You just be showing Out #HAPPY#THURSDAY °°°°°°°°°°°°°°°°°° I trust in you with all my heart and lean not onto my own understandings..You always Provide 😝 °°°°°°°°°°°°°°°°° What's the Purpose? #Prosperity Change your reason❗ #Prosperous Change your results. #Exceedingly Anything Is Possible. The Power of 🌠 a #teatufulgirl #IknowtheTruth #universalshit #prettyBlessed #teatuful⚖️#instagood #weekendvibes #thankyou#love#faith #vibes #feelingBlessed #Thelordismyshepard #WHENyouKnowBetter 👀#imawarethatimRare #reasonreapresult📷#teatufulquotes (at Atlanta, Georgia)

H A P P Y #Monday 💜 #reasonreapresult📷 #creatIt #helpyourself #prosper #itsmonday Anything Is Possible. The Power of 🌠 a #teatufulgirl #IknowtheTruth #universalshit #teatufulquotes #teatuful⚖️ #LOA #prosperity #passiveincome #WHENyouKnowBetter 👀#imawarethatimRare #teatufulquotes #motivationalquotes (at Northwest Atlanta, Atlanta, Georgia)

#HAPPYWEDNESDAY 💜 What if Your Gross could Grow? Faith Is My Substance Consistent Actions Create #CONSISTENT RESULTS #TakeRiskAndProsper M I N D F U L 💜 #FreeGame🙏🏿#prettyblessed⚖️🙅🏽👁💆🏾 🤷🏽‍♀️ 🙇🏽‍♀️🤦🏾‍♀️👩🏽‍🎤👩🏽‍🏫👩🏽‍💻👸🏽👷🏽‍♀️💃🏾 #thankyougod ✨💜✨S O L I D ⚖️ # #notUrUsual What's the Purpose? Change your reason❗ Change your results. Anything Is Possible. The Power of 🌠 a #teatufulgirl #mindfulness #IknowtheTruth #teatufulquotes #teatuful⚖️ #WHENyouKnowBetter 👀#imawarethatimRare #reasonreapresult📷 #teatufulquotes #teatufulgirl (at Union City, Georgia)

Faith Is My Substance Consistent Actions Create #CONSISTENT RESULTS #TakeRiskAndProsper M I N D F U L 💜 #FreeGame🙏🏿#prettyblessed⚖️🙅🏽👁💆🏾 🤷🏽‍♀️ 🙇🏽‍♀️🤦🏾‍♀️👩🏽‍🎤👩🏽‍🏫👩🏽‍💻👸🏽👷🏽‍♀️💃🏾 #thankyougod I be learning tho catching on An Shit Acting yea all dat ✨💜✨S O L I D ⚖️ #libraasfuck #notUrUsual What's the Purpose? Change your reason❗ Change your results. Anything Is Possible. The Power of 🌠 a #teatufulgirl #mindfulness #IknowtheTruth #universalshit #teatufulquotes #teatuful⚖️ #WHENyouKnowBetter 👀#imawarethatimRare #reasonreapresult📷 #teatufulquotes (at Atlanta, Georgia)

Today is the last day of February, which means it's rare disease day. A disease is called rare when less than 5 in 10.000 people are diagnosed with it, and it has to be life treating or chronic. In my case it means I have multiple rare diseases. The first one was a rhabdoïd tumor in my right kidney, about 1 in 12.000.000. After that I've got a sinus thrombosis and a vestibular schwannoma, both about 1 in 100.000. Becasue of this is developed idiopathic intracranial hypertension, also 1 in 100.000. A DVT in my arm, not very common (don't know the exact number). Also I have renal tubular acidosis and fanconi syndrome, causing severe electrolyte imbalance. Although isolated proximal (type 2) or distal (type 1) tubular pathologies are well characterized, a combined pathology leading to type 3 RTA is extremely rare. There needs to be more awareness for rare diseases and the complications they can cause. ------------------------------- #imawarethatimrare #raredisease #rarediseaseday2018 #icareaboutrare #intracranialhypertension #sinusthrombosis #vestibularschwannoma #rhabdoid #rhabdoidtumor #armthrombosis #pseudotumorcerebri #fanconisyndrome #butyoudontlooksick #rarediseaseawareness #rta #renaltubularacidosis #renaltubulardysfunction #electrolyteimbalance #hypokalemia #hypophosphatasia #lowpotassium #lowpotassiumlevels #lowphosphorus #lowphosphate #chronicillness #invisibleillness #spoonieproblems #weneedacure #totiredtofunction #chronichope