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the thing that drives me crazy about fibromyalgia is trying to explain it to people. yes i am in pain all the time. no i didn't do anything to get hurt. no it will almost definitely never go away entirely. no i don't know what caused it.
"so you're just going to be on pills your whole life" if the pills keep working, yeah, probably! i don't like being in pain!
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Really hate hearing comments like “just getting old, I guess” or “that’s what happens when you get older” or “just wait til you’re my age!”
For one, it sparks a sort of existential dread and horrid fear of aging that I should not have to feel. Secondly, it sort of implies that older people have a monopoly on aches and pain, and assumes that it’s not something that affects young people.
In case you're wondering what chronic pain feels like, it's being awake and in pain for over two hours but not realizing it because you're so used to The Pain that you tune out and replace the concept of pain with "something feels bad but idk what" until you're mentally awake enough to be aware of bodily sensations and come to the conclusion you should have taken painkillers two hours ago!
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Does anyone else find themselves categorising their pain by diagnosis? Like
“That’s fibro.”
“Endo.”
“Migraine.”
“Ooh, hyper mobility it’s been a while.”
Like a running background commentary on what’s currently making me miserable.
I'm so sick of healthy, abled-bodied people acting all surprised when they learn how strict my routine is. “Oh I could never do that, I don't have that much willpower haha.” It’s not willpower bitch, it’s fear!!!!! If you had real-life, painful, immediate consequences for your bad decision you would be running to get in line too!
Less of a fibro warrior and more of a fibro victim tbh
