Oct 24, 2019
Quand de nouvelles diagnostiquĂ©es, dans lâĆil de cyclone, me contactentÂ
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Quand de nouvelles diagnostiquĂ©es, dans lâĆil de cyclone, me contactentÂ
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March was Endometriosis Awareness month, and my fellow #endosister @georgiewileman had a beautiful awareness campaign where Endo sufferers dated and connected their scars and tagged #thisisendometriosis So many people sent me the campaign, but it was all happening just as my dad died and I wanted to join in and support the campaign but it was just too much for me at the time. I had 12 years of treatment and four Endo surgeries. I was put into medical menopause at the age of 29 before I finally had to undergo a total hysterectomy and bilateral salpingo-oophorectomy. I read a recent study that estimated 13% of all women and trans men are currently suffering with Endo. I had no idea that the pain I was in wasnât normal. Itâs not something that was talked about. I thought I was just weaker than other girls who could just take a midol and continue with life. I felt like a werewolf- terrified of the coming moon that would cage me in days and sleepless nights of writhing, vomiting pain. It wasnât normal. I had Endometriosis and it went untreated and undiagnosed until it was too late to salvage my reproductive system. We know so little about this disease that affects millions. We have no tests outside of invasive surgeries to diagnose it and many of the treatments available come at desperately high costs - financially, physically and emotionally. Spreading Endometriosis awareness is a vital part of the battle that we can participate in on the quest for answers and a cure. #sickgirlsclub ; Iâm here for you. #endometriosisawareness #endometriosis #hysterectomy #hystersisters https://www.instagram.com/p/Bxn1YMQn3ss/?igshid=18dgzak5qrfq2
#TB by @rxcmillion ⣠⣠Life is great...Life is blessed đ»â€ïžâŁ ⣠#Archives #Wednesday #WednesdayMotivation #BlackGirls #darkskin #beauty #Model #Motivation #darkskingram #melaninqueen #melaninpoppin #selfcare #selflove #Endosister #Endometriosis #blackbeauty (at ModĂšle) https://www.instagram.com/p/B3rOOA-FgRj/?igshid=3hmo8wi2ff8f
Un point sur les compléments !
Depuis quelques temps jâexpĂ©rimente des « cures », jâai eu des rĂ©sultats plutĂŽt pas mal donc je vous les partage ici :
La levure de biĂšre en gĂ©lules : contre la perte des cheveux, on mâa dit de prendre ca avc prĂ©caution si je ne voulais pas ressembler Ă un singe, ca ne fait pas que renforcer et pousser les cheveux... jâen prend donc un comprimĂ© par jour et mes cheveux tombent moins depuis quelques mois.
Les masques huile de ricin/coco : jâai appliquĂ© ces masques maison une fois par semaine pendant 5 mois jâai constatĂ© que mes cheveux Ă©taient plus jolis et plus forts. Jâai moins de perte de cheveux grĂące à ça et la levure de biĂšre.
La gelĂ©e royale en gĂ©lules : jâai testĂ© ca en fin dâannĂ©e scolaire, jĂ©tais dans un Ă©tat de fatigue incroyable entre le travail et les dĂ©buts du traitement difficiles. Je me sentais un peu mieux moins mollassonne mais rien de super fou quoi !
Les OmĂ©ga 3 en gĂ©lules : alors jâavais lu que les aliments qui Ă©taient riches en OmĂ©ga 3 Ă©taient bĂ©nĂ©fiques contre les douleurs dâendomĂ©triose. Et bien je peux dire que je ressent une diffĂ©rence. Jâai moins souvent de douleurs et câest moins violent depuis que jâen prend enfin ca ne mâempĂȘche pas de douiller hein mais ca rend les douleurs un peu plus supportables.
Je vais bientĂŽt tester des extraits de bourgeons de framboisiers câest la nana de ma boutique bio qui a fait des recherches et qui mâa dit de tester ca on verra ce que ca donne !! Les framboisiers ont des bĂ©nĂ©fices contre lâendo, je ne suis pas trĂšs tisanes donc cette solution me parait pas mal.
Niveau alimentation : Jâai du bannir certains aliments, certains plus facilement que dâautres, mais depuis que je nâen consomme plus je fais moins de crises : le lait, les yaourts, le soja, tout ce qui contient de la lechitine de soja donc Ă©normĂ©ment de produits, tous les gĂąteaux industriels et compagnie, lâalcool (enfin sauf le vin rouge), les biscottes, le poisson cru. Jâai rĂ©ellement moins de douleurs depuis que je fais attention Ă mon alimentation, bien sĂ»r je craque quelques fois pour un cacao mais je mâen mord les doigts ensuite. Je nâai pas trouvĂ© dâĂ©quivalent satisfaisant au lait de vache, les yaourts ca passe mieux mais il en existe encore trop peu au lait de coco ou dâamande, on se rabat sur les compotes !
Ce nâest vraiment pas Ă©vident de devoir modifier ses habitudes alimentaires et de devoir sacrifier certains aliments (surtout quand câest une passion de manger, ce qui est mon cas) mais si on veut un peu amĂ©liorer son quotidien on a finalement pas le choix que de devoir dire au revoir Ă tout ca !
Chronic illness: a summary
Me to my husband: I seem to get sick every time I eat.
My husband: you seem to get sick any time you anything.
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just a quick note to all my fellow chronically ill students from my insta story this evening. Stay strong, my friends. You can do this. đđđ
Another holiday, another endo flare. Over the past 10 years I have spent multiple holidays in the hospital or bedridden due to this horrible pain. Sadly, today is not different. #Endometriosis #EndometriosisSister #EndometriosisWarrior #EndometriosisAwareness #EndometriosisSurvivor #EndometriosisSupport #EndoSister #EndoFlare #EndoAwareness #EndoWarrior #ChronicPain #Lupus #LupusSupport #LupusWarrior #LupusNephritis #Arthritis #LupusPain #LupusAwareness #ArthritisPain #ArthritisSupport #ArthritisAwareness #ArthritisWarrior #ChronicIllnessAwareness #ChronicPain #ChronicIllness #Spoonie #ChrinicPainAwareness #InvisibleIllnessAwareness #ChronicFatigue #Spoonie #InvisibleIllness #MomInChronicPain
Good news, kids
Looks like I may finally be getting rid of this no-good uterus