#disabledandhere

Posted @withrepost • @blackdisabledlivesmatters Dropping love today to all my NY . Especially to disabled unicorn @jermainegreaves Here is a Collage Art Tribute to My homie and fellow disabled activist and recent D-30 Disability Impact List honoree Jermaine Greaves. Jermaine justly continues to seek out aid and support for ongoing access to professional medical care, home care,  sustainable and reliable housing, meal prep, and more. In addition to living with Cerebral Palsy, a recent chronic skin condition was revealed to be Hidradenitis Suppurativa (HS) an autoimmune disease which impacts his performance art, independence and self care. He has been repeatedly hospitalized for skin infections and needs consistent open wound care. Additionally, his Medicare insurance will not cover all of these expenses and wound care treatments as they will only cover 3 days of wound care, leaving him without care for the remainder of the week, leaving Jermaine vulnerable for reinfection. I’m sharing his info in solidarity and showing y’all that his disability joy shall not be diminished because of financial oppression and ableism set against queer black disabled folks! Please consider donating to his go fund me! More info below: In order to treat HS and get better to physically be more independent in the way that he was prior to his diagnosis we need the following: Home care nursing (wound care treatments administered by RN): $10,000 (3 months) Rent for 1 year: $9,600 HS Doctor (specialist) to see as needed throughout this treatment Cost: $250/co-pay per visit (2x per month): $6,000 Inflatable bed for home care attendant $200 (+ 400 for replacements) = $600 Paypal.me/jermainegreaves Cashapp: jermainepartyplanner Venmo: jermaine-greaves If you have the means to help and support through donations much love and appreciation to you. You can also help by sharing and spreading the word! #BlackDisabledLivesMatter #MutualAid #CripJoy #disability #DisabilityJoy #DisabiltyPride #DisabledAndHere #DisabledAndCute https://www.instagram.com/p/CkGxB1YuVsy/?igshid=NGJjMDIxMWI=

Reblog or share if you believe disabled voices deserve to be heard.

via @timotheusgordon Now using #DisabledAndHere royalty-free pics for presentations for now on! Thank you #DisVoteSummit22!! Needed to find more BIPOC and LGBT+ repped pics anyways for my plain language materials for @idhd_uic (at UIC Department of Disability and Human Development) https://www.instagram.com/p/CfcJODOOYKU/?igshid=NGJjMDIxMWI=

I haven’t posted in years, and this one is dedicated to all the Disabled people I’ve heard from over the years, who along with my experience, have shown me just how messed up everything is about how we treat each other in this world. As the pandemic has progressed and healthcare has become even less accesible than before, I’ve largely receded into myself. It’s been really hard, seeing people I’ve cared about—and even loved so dearly—act in ways that show they care not for people who are Disabled. That would be enough, but there’s also progressive, serious illness that is a torture to live with. I’ve become this amalgam of trauma, which has me drifting through a haze, unable to realize my hopes, dreams, or even to just live a day as my true self. I’ve written many poems, songs, and mini-essays as a way of expressing and coping, but even those essential tools are getting away from me. I’d like to say that I have support in all of this socially, but I don’t, minus the various interactions online with people who are dealing with the same types of things. And in a world full of ableism, isolation and pain is to be expected. It’s hard to kind to yourself when the weight of so many things—things I can’t even begin to fully encapsulate here—are making you feel like you have no worth. But I’ll give myself this: I know that within me lies a great worth that isn’t valued. I know that I can create wonderful things, and have been a great help to the people I’ve been there for. Despite everything else inside of me that has developed as a result of pain, I know that I’m not a bad person. I just hope that I can find a way to be valued by others, because valuing ourselves alone isn’t enough. Isolation is not sustainable. I’m really hurting and hope I can keep going. It’s not even that I have hope for a better future most days, just that I exist to spite everything that says I shouldn’t. All my love to those who are struggling, and who truly care for the lives of the most vulnerable among us. And a special thanks to anyone who sees this long post as worthy of a read. —————— #chronicillness #disability #disabledart #disabledandhere #photography #pnw #landscape (at Sublimity, Oregon) https://www.instagram.com/p/Ceuk1dxLOzJ/?igshid=NGJjMDIxMWI=