#disability activism

“We [people with disabilities] are the last thing on the HR discrimination list. Companies always list things like, ‘we eliminate discrimination on the basis of gender, race, religion, nationality, identity… oh, and disability.’ It’s just tacked on at the end. The others are mostly about being nice, respectful, and treating people equally. Not discriminating against people with disabilities is more complicated. You need to change your environment, code, the way you design things. You actually need to make changes, and most companies do not want to do that.”

if it isn't actively bad or harmful, no representation should be called "too simple" or "too surface level"

I have a whole argument for this about the barbie movie but today I wanna talk about a show called "the babysitters club" on Netflix

(obligatory disclaimer that I watched only two episodes of this show so if it's super problematic I'm sorry) (yes. I know it's based on a book, this is about the show)

this is a silly 8+ show that my 9 year old sister is watching and it manages to tackle so many complex topics in such an easy way. basic premise is these 13 year old girls have a babysitting agency.

in one episode, a girl babysits this transfem kid. the approach is super simple, with the kid saying stuff like "oh no, those are my old boy clothes, these are my girl clothes". they have to go to the doctor and everyone is calling the kid by her dead name and using he/him and this 13 year old snaps at like a group of doctors and they all listen to her. it's pure fantasy and any person versed in trans theory would point out a bunch of mistakes.

but after watching this episode, my little sister started switching to my name instead of my dead name and intercalating he/him pronouns when talking about me.

one of the 13 years old is a diabetic and sometimes her whole personality is taken over by that. but she has this episode where she pushes herself to her limit and passes out and talks about being in a coma for a while because of not recognizing the limits of her disability.

and this allowed my 9 year old sister to understand me better when I say "I really want to play with you but right now my body physically can't do that" (I'm disabled). she has even asked me why I'm pushing myself, why I'm not using my crutches when I complain about pain.

my mom is 50 years old and watching this show with my sister. she said the episode about the diabetic girl helped her understand me and my disability better. she grew up disabled as well, but she was taught to shut up and power through.

Hey, if you’re disabled (of any kind), Mad/Insane, or “undiagnosed but there’s definitely something happening”, please come read this.

Especially if you’re a disabled transfemme. I know that as of writing, we’ve had a shitty couple days.

And if y’all can share it otherwise, whether that’s reblogging this or sending the link to the disabled/mad/whatever we are people in your life, I’d really appreciate it.

Some people are housebound. Bed bound. Some people physically can’t eat, shower, or use the toilet without the assistance of a caretaker. Some people don’t have the spoons to get out of bed in the morning, let alone work a 9-5 job in this capitalist hellhole.

You’re not lazy. You’re not less than.

And this is coming from a disabled person with chronic pain who can leave the house and walk (with some pain) without mobility aids.

You deserve to take up space. You deserve to cost money. You deserve to be here without feeling guilty just because you can’t give back in the traditional way.

Like this applies to all “invisible” disabilities in the sense that just bc you can’t see what’s wrong doesn’t mean nothing is wrong or they aren’t disabled but it’s especially the case for chronic migraines

Migraines are NOT just headaches. It’s not just “oof ow my head hurt :(”, Migraines are WHOLE body affair. It’s getting weepy and irritable hours before the pain hits, it’s starting to get clumsy and feeling body aches just before the pain starts, it’s getting stiff because of the aches and sensitive to light and sound because of how heightened senses get.

And when the pain gets, sometimes it is the general image of someone locked in a dark room in bed, which is genuinely awful bc you can’t do anything. You just have to lay there and stew in your pain and no medicine touches it and everything hurts, worst of all your head and there is nothing to focus on other than the pain because any light hurts and any sound hurts.

But sometimes the pain isn’t bad enough for that, or sometimes you have to work or go to school with nails in your head and it’s impossible to focus. Your depth perception gets wonky, you’re clumsy, you slur or stumble over your words because so much of your brain is occupied only by pain. You can’t miss another day of work, you can’t miss the money, but you’re messing up orders or you’re misunderstanding instructions.

And then there’s the after. Postdrome, the migraine hangover. Where the emotional and irritability returns, and you have issues with your stomach, very often leaving you unable to eat or drink without puking. Your neck is stiff, your head feels heavy, your brain is so fogged up that you can barely string together a coherent sentence. Your body aches much worse than before, and you’re exhausted, fatigued to hell and back, and that lasts for 1-3 days after the actual migraine.

Migraines are a multi-day condition that affects EVERY aspect of your fucking life. And medicines that treat the pain very often only lessen the symptoms that occur before and after.

“To know Alice was to love her. She felt larger than life, with a generosity, ingenuity, humor, and passion for justice unlike anything I’ve ever known.” - Lisa McCorkell

Beloved disability activist Alice Wong has died at age 51. If you aren't familiar with this wonderful woman who did so much to connect countless disabled people to one another, I highly recommend checking out her work. Disability Intimacy is a personal favorite.

disabilityvisibilityproject.com (donate here)