š³ Update : Chris and I are āļø to Texas Childrenās Hospital in Houston later this week for two days of appointments, meetings, scans, an MRI, and hopefully some time to look at short-term apartments for when I relocate later this summer. TCH is where we plan to deliver our precious Lysander, and where he will receive the best care we can provide for him at this time. . . I am feeling all the feelings, especially as I think about eventually living so far from my 3 older kiddos for months... I also feel nervous about our medical journey, living in a new city while recovering from having a baby, a long NICU stay, and all the unknowns about how Lysander will fare once heās born. Itās a bit paralyzing and a lot overwhelming at times. āStaying strongā is a luxury, ākeeping it togetherā is a struggle, and to be quite honest, Iām just weary in every way. There are so many positive CDH success stories out there, some Iām witnessing daily, but Iāve yet to find a baby with CDH and other the congenital anomalies that our baby has, particularly his tiny size, underdevelopment, and missing limbs. So... just a lot of unknowns and really just waiting and trusting God with every moment, thought, feeling, fear... And still there is much to be thankful for... . . The parents, my Eās and I enjoyed a fun walk at Turkey Creek Park today. It was very hot out. My dad snapped this of me wading in the creek; I was seriously wishing Iād brought extra clothes so I couldāve submerged myself. š #stillpregnant #sograteful . . . #cdh #congentialdiaphragmatichernia #lcdh #lysanderimmanuel #30weeksgestation
