#actuallyartistic

THEYRE CUTE edit : GUYS ITS OUT NOW ON @iluvizuocha YT https://youtu.be/3tmpgERGhfg?si=A97dQwrj4VfvrDAi

2-23-18 Theatrically Thursday So I feel like I've been getting sicker slowly. Ever since the seizure. I pushed myself too hard yesterday u realized so today my boyfriend said I was bed ridden. So that's a picture of the little bunker I'm in and was confined to for the day. So I kept reading my book and I rested all day basically. I didn't go to the front seat then we stopped at a truck stop and showered and I saw penny there! Penny Is my new zebra baby. She's a zebra like Zoey and they both understand my chronic illnesses because they have the illnesses too. Zebra is the "mascot" for EDS because just like zebras not every patient has the same set of symptoms and zebras don't all have the same set of strips. Also in medical school the students are taught "when u hear hoof beats think of horses not zebras" so in other words always assume it's the more common disorder. But we ended up being the rare disorder not common one. So we are zebras. So now penny and Zoey and I r gonna travel even thigh it's hard on us. We r gonna travel before we get sicker and it's too late. Tomorrow we will start driving to Arizona. I took a breathing treatment and am ready for bed. Goodnight. Sending spoons and love

2-26-18 Manic Monday So my derma has flared badly. It's been really hard the past couple days. I've destroyed my fingers. So I bought peroxide and more bandaids today. I love my new sweater so much. It's been super comforting especially after feeling terrible for my derma episode. It happened while we were driving and I was staring out the window and then points after that until it was really bad. The micky mouse bandaid is the worst but I don't want to post a picture as to not trigger any of my other derma peeps or disturb anyone who can't stand pictures like that for any reason what so ever. So you get a picture of it band aided with micky mouse. I've seen some nice views and I can't wait to get my new phone so I can edit them. Right now I'm using my mom's phone because mine hadn't been delivered yet. I loved Arizona but now we are headed to L.A. yesterday we didn't do much and today I wasn't feeling to well so I ate sicky foods. Soup, crackers, and peanut butter. And I'm doing a lil better. We did laundry. Showered. And while we waited for the laundry jeepers creepers was on in the lounge so I enjoyed watching that. Now I'm going to go to sleep. Hope tomorrow my tummy is doing a lil better. Goodnight everyone. Spoons and love.

Update, I'm alive. I've been sick but alive. Was recently diagnosed with POTS, postural orthostatic tachycardia syndrome. And been seeing doctors about every week. Hope everyone is doing ok out there. I'm gonna be posting again but it might be with little to no pictures incase its just easier for me to do that. Side note, I'll working on a new stimtastic product coming to store soon. Spoiler its soft and kinda fluffy.

9-29-17 Fidget Friday Health has been iffy lately but i have had many a enjoyable days. Ive gotten into travelers notebooks and its a nice artistic outlet but also great for organzing my medical life. I have discovered a couple new phone games to occupy myself as i go through the day. Especially the days i am bed ridden. I have been receiving medication that actually helps! I also got my first epi pen so i feel more secure with that, although i do hope i never have to use it. And ive spent relaxing days with my husband just kicking back. Today i saw a very old friend whom i had lost touch with. He is actually my ex boyfriend but we were good friends before that and both believe we can continue to be after. It was nice to reconnect with him and we attended the mall. He was also very kind and attentive to my medical conditions and needs which is the kinda friends i need. (And i do not have many irl friends period so that is nice) and i got a blind bag keychain and got stitch! I am happy because i can give it to my husband because we are lilo and stitch so he loves stitch. Well thats my check in for today. Stay safe and sending love and spoons to everyone. Now ima relax listening to Pandora

6-20-17 Teething Tuesday I hurt. Ive been very busy. Yesterday i want to lush and cleaned and fixed my hermit crabs tank. They are beyond happy. But standing on a chair and getting on and off for two hours broke me. I also made a quick run to lush for essentials before all that. Then i had PT today. Physical therapy. It went great. My PT isnt the friendliest guy but knowledgeable and willing to work with me and what not. So now i have twice weekly PT. Im actually looking forward to the hard work. Im hoping itll help. Thats the dream. As of right now I'm in alot of pain from it. Which ill mention. Because he wants me to also do a at home exercise plan twice daily. And i don't know if it's possible with how broken i feel. But I'm going to try. Also its been really hot here. Like 116 F hot. And that's very dangerous for my health and heat sensitivity. In better news i took a cool bubble bath too cool down. Used my rubber ducky and a new magic wash cloth i got from the dollar tree. It expanded and was Spider-Man. And got my Pokemon eeveelution plushies out so they can be out and together now. The there original were in a box temporarily and i got leafeon when i had my eegs done but she needed to be with the family. I will complete it one day. And i got pikachu out to hang with them. Much love and spoons to everyone out there.

This is my weighted bunny clara from stimtastic

4-11-17 Teething Tuesday It was my birthday today. I'm still sick. I even had a seizure today. But i had a day. My husband got me 4 games and put the raised thumb grips on my controller and got me a dancing baby groot from Guardians of the galaxy because I am groot. But im especially BABY groot! So he is my new friend and hes visually stimulating to look at and he has a great texture and feels good in my hands when i grab him. He just fits perfectly. Last night my derma got the better of me and i murdered the side of my thumb nail. But it's doing better. My husband bought us a feast last night and we played one of the games he got because he gave me my presents yesterday. And i was disasociating yesterday too but honestly my baby groot helped ground me! Before bed yesterday i used the humidifier and drank tea. I woke up feeling a tad better. We played mortal combat this morning. Then i got ready to go to a religious thing i go to every year called the memorial. It just happened to be on my birthday this year. I had a seizure while i was there but was able to stay then after we went to eat. It was amazing. Now I'm very tired and tomorrow will probably have to be a hard core spoonie day to recharge.