Fuck the ER? Leg Tremors and Pain.
I have FND and hEDS. Normally my FND just presents as seizures, which sucks, but is manageable enough. My hEDS has caused a bulging disk on my L5-S1 joint in my back. It has swelling visible from the outside. I do not have sciatic nerve pain, but my SI joint is my most frequently dislocated.
Four or five days ago, I had a seizure cluster and took my emergency medication - .5mg of Ativan. I don’t take this medication often, maybe 3-5 times a month. When I woke up from my post-ictal stage, my legs felt different. Bad.
When I tried to stand, I had tremors in both knees. Then the bone pain started. As if someone was driving a wedge into the back of my femur with a hammer. It wasn’t constant, but when it happened all I could do was hug my leg and focus on breathing.
Two or three days ago, I went to the ER. They treated me like an addict in withdrawal, and gave me 2mg - four times my normal dose - of Ativan. They then sent me home without seeing if it helped the tremors at all. They completely disregarded the bone pain.
When I woke up from the four hour medication nap, the tremors were still there, and the wedge had turned into a drill saw.
One or two days ago, I saw my physical therapist. He put my SI joint back in place. But the tremors and pain persist. I went to a different Urgent Care. They gave me a shot of Toradol, which did nothing. They prescribed me steroids to try to help with the pain. I am concerned to take steroids because they can make my pre-existing neurological conditions worse. When I expressed this concern, my support person said, “I thought you wanted help.”
Today, the pain has spread to my whole right leg. Every time I move it feels like my leg will give out from under me. Pain and discomfort shoot through my bones at a steady enough pace that I cannot cry, but I cannot move.
I am scared to go to the hospital. I am scared to take steroids. I am scared to not do anything at all. I am scared to get worse. I am scared I am scared I am scared.















